Help Line for Families with Special Needs Kids

The Mom2Mom help line was recently launched by the autism center and behavioral health care unit of the University of Medicine and Dentistry of New Jersey. The program seeks to offer caregiving moms peer counseling, clinical assessments and the resources and referrals they might need to locate services. Its founders recognize, however, that sometimes what a mother might need most is to talk to someone “who has walked a mile in their shoes,” said Cherie Castellano, program director for UMDNJ Behavioral Health Care.

This sounds like a great resource. With the preponderance of support available online, it’s nice to know there’s still a voice that understands a phone call away.

 

Autism, Vaccines and Andrew Wakefield

The current media storm surrounding vaccinations and autism is one that, I’m sure, we’ve all been following with great interest. The initial study that linked autism with vaccinations has been dismissed and retracted by the majority of the original authors. Currently, there is speculation that Mr. Wakefield may have falsified data. Many parent advocates are claiming this is a smear campaign being conducted in the name of protecting pharmaceutical companies to the detriment of children.

We know that this is an incredibly sensitive issue with opinions strong on both sides of the fence. We do think it’s an important issue to discuss, respectfully, within our community. For parents, do you believe that the MMR vaccination contributed to your child’s autism? What is your opinion of Andrew Wakefield and his study?

Here’s some coverage of both sides of the issue from CNN, if you’d like to see more on the reporting.

Enter to win a free iPad from the HollyRod Foundation

The HollyRod Foundation is raising money to provide free iPads to families in need. Applications are being accepted until December 31, 2010. In trying to donate to the those in the most need, the guidelines stipulate that the child is non-verbal or minimally verbal and that the family falls below a certain income level. We applaud the HollyRod Foundation for trying to make a real difference in the lives of families in our community.

Traveling for the holidays? Here are some tips.

Traveling for the holidays can be stressful with long lines, delays and unanticipated changes to plans. The Autism Speaks blog has a helpful post that gives parents simple strategies and tips for preparing both the individual with autism and airline personnel so that the trip goes as smoothly as possible. Check out the section on the Autism Speaks site called Travel Tips for Individuals with Autism and Their Families for even more information. Kathy Labosh has written two practical booklets that are filled with hints and tips on how to travel both in the community and to Florida with a child with autism.

Do you travel or fly with your child? If so, how do you prepare? Any helpful hints for other parents who are planning a trip?

 

Congress To Consider National Special Needs Parent Day

A resolution calling for the establishment of a national day to recognize the parents of children with special needs is expected to be considered as early as Tuesday in the House of Representatives. Parents, you deserve this and so much more for all that you do.

There is some criticism of this resolution claiming that a day of recognition isn’t what’s needed as much as research, financial support and better services. What do you think?

Special Screening of Harry Potter for Hearing & Sight Impaired Children

Awhile back, we told you about AMC Entertainment offering special monthly viewings for children with autism spectrum disorders where they dim the lights and turn down the sound to make movie watching less of an overwhelming experience for children with sensory issues. Well, as the latest Harry Potter movie makes its way to theaters, a movie theater in Richmond, Virginia is offering special opening weekend screenings for individuals who are hearing and sight-impaired. We think it’s fantastic that more mainstream outlets are taking individuals with special needs into account!

Preparing for Thanksgiving at School

This is an interesting article about students with special needs at Dexter Middle school “practicing” a Thanksgiving meal. We thought this was a fantastic idea! By preparing children for what to expect at a holiday gathering and meal, either in school or at home, perhaps some anxiety and behavioral issues can be avoided. Do any of you “practice” the holidays to avoid stress and make the event easier for your children?

At the Age of Peekaboo, in Therapy to Fight Autism

This is a really interesting article in the NY Times about early autism diagnosis and the steps taken by one particular family. The treatment is based on a daily therapy, the Early Start Denver Model, that is based on games and pretend play. Do you think your child’s outcome would have been effected if they had received a diagnosis by age two?

From Stim to Power Reinforcers

We’ve been through a ton of stimming.  Pin wheels, spinning toys, pouring sand, watching water move from container to container were all familiar stims at our house.  

 The only one that really struck fear in our hearts was flipping the pages of magazines.  At first it was only a particular kind of magazine, but later, any would do.  Flipping the pages of a magazine always led to a little tear, then a lot of tearing, which led to trying to fix the pages (by us), which led to hopeless fixes and “help me, please” and then aggressive behavior.   Some of you knew where this was leading at “flipping the pages”.

 This behavior started very early, at age 3.  We were unable to control the behavior.  Instead by the time she was 5, we wiped out magazines, hid books and reams of paper, everything flippable was gone from the house.  We never read a newspaper, never looked up a recipe in a cookbook and kept computer paper high up on the shelf.

Many years, later, that same obsession is a power reinforcer.  The magazine is controlled under specific circumstance, perhaps a haircut or a difficult medical treatment.
The whole premise of Applied Behavior Analysis is working to get what you want. As Joanne Gerenser used to say, “Most people work for the most powerful reinforcer: Money!”

I wish we had understood and used the concept of reinforcement at the beginning and used it to the family’s advantage.  I was too scared to introduce it but braver parents can use those stims and obsessions to shape behaviors and make life smoother by creating the right delivery of rewards.

– Julie

Children helping children!

I am always moved to learn about inventive developments in the fields of education and intervention for children with autism.  But how often do you hear about interventions being designed for children BY children?  Well that is exactly what Zak Kukoff did when he developed Autism Ambassadors.  Zak, a typically developing 15-year old, created a curriculum that “will engage typical children and children with ASD’s in a mutually beneficial relationship.” There is research that supports the efficacy of using peer models to facilitate observational learning with children with autism but how often have you seen examples where it has been successfully implemented?  We would love for you to share your stories regarding peer modeling or your experience with Autism Ambassadors!