Tip of the Week: School Placement Checklist for Students with Autism

This time of year many parents are researching and visiting schools, trying to find a school placement that makes sense for their child. Here in New York City, parents have many options, while parents living in other places may be presented with very few options. In both situations, finding the right school placement to meet your child’s unique needs can feel impossible.

Over the years, I have visited many potential school placements with the families I’ve worked with. I’ve generated the list of questions below to help those families have more productive, focused, and useful school visits. I recommend that you read through the questions, then prioritize them before making school visits.

Teacher and children sitting on floors with hands raised

The Classroom Environment

  1. How many children are in the classroom?
  2. How many staff are in the classroom? Will your child have enough support as mandated by his/her IEP?
  3. Where is the classroom located? Does it require your child to walk up and down many stairs? Is it too close or too far from an exit? Is it isolated from the rest of the building?
  4. Is the classroom large enough for all students and staff to move safely and comfortably? Is the furniture appropriate for your child’s size?
  5. Does the classroom environment and structure fit the needs of your child?
  6. Are all students engaged in productive work?
  7. Are maladaptive behaviors appropriately addressed?
  8. If your child will be in a Collaborative Team Teaching class, what is the ratio of general education students to special education students?
  9. What academic supports are available in the classroom? Computers? Class library? Centers?
  10. What is the age range of students in the class? Does is span more than three years?
  11. Does the level of academic functioning within the classroom match your child’s needs?
  12. Does the level of language functioning within the classroom match your child’s needs?
  13. Do the behavior management needs of the classroom match your child’s needs?
  14. Do any students have 1:1 paraprofessionals to meet their needs as mandated by an IEP?

Academics

  1. What curriculum does the school use?
  2. Is there a specific teaching methodology used within the classroom? If so, what type of training do the teachers receive in that methodology?
  3. Will the teacher need to modify the curriculum in order to meet your child’s needs? If so, what supports will be in place to help him/her modify it appropriately?
  4. How often are student “mainstreamed” into the general education population? What is the school’s typical process for this?
  5. What typically happens to special education students after aging out of the school? What high schools or colleges do they go to? Do they secure jobs?

Related Services (Speech, OT, PT, Counseling)

  1. Are related services provided through pull out, push in, or a combination of both?
  2. Are related service providers assigned to the class on a regular basis?
  3. Do related service providers have enough time in their schedule to meet your child’s mandate?
  4. How are parents notified if sessions are missed or if special concerns arise during sessions?
  5. Are missed sessions made up?
  6. Does the school apply a set level of mandated services for each class?

Transportation

  1. How close is the school to my home?
  2. Is bus service available? If so, will it be provided by a mini-bus or a large yellow school bus? How long will my child have to spend on the bus? How many students will be on the bus? Is my child the first or last to be picked up or dropped of? Does the bus schedule interfere with my child’s medication schedule? Who will be responsible for taking my child off the bus in the morning and putting him/her on the bus in the afternoon?
  3. Where will my child line up at school in the morning and at dismissal? What is the staff/student ratio for supervision during those transitions?

Preschool children working together on puzzle. Image shot 2009. Exact date unknown.

Interaction with Peers in General Education/Shared Spaces

  1. What age range is represented within the entire school? Is it appropriate for your child?
  2. What opportunities are there for your child to interact with the general education population within the school (field trips, field day, extracurricular activities, etc.)? How often do these opportunities occur?
  3. Are there any social skills or extracurricular programs in which general education students come into your child’s classroom or special education students go into a general education classroom?
  4. How many children will be in the cafeteria while my child is eating there? What is the staff/student ratio of the cafeteria during that time? What age range will be sharing the cafeteria with my child?
  5. What extracurricular subjects will your child receive? Will these be offered in his/her classroom? Will your child need to travel to a separate classroom? Will extracurricular subjects be provided within the same class, or will my child be included with general education peers?
  6. Do students go on field trips? What class field trips have the students recently been on? Do students travel by bus? Are parents able to attend field trips? What is the child/teacher ratio on field trips? Will field trips be provided within the same class, or will my child be included with general education peers? How often do field trips occur?

Communication with the School

  1. What is the application process like? Any important deadlines? Online or paper application?
  2. How will the school stay in contact with me? Daily notebook? Emails?

Join us TONIGHT for an ABA Q&A with Sam Blanco, BCBA

Join us for a live ABA Q&A with Sam Blanco, BCBA TONIGHT from 7:00 to 8:00pm ET! Our primary focus will be on Managing Difficult Behaviors. Here is a chance to get your specific questions answered in real time by a Board Certified Behavior Analyst. Just visit our Facebook page and post your question here. For details of the Q&A, visit the event page here.

If you can’t make the live Q&A with us on tonight, you can post your questions in advance, and we’ll make sure your questions are answered. Don’t forget to check back to the app for Sam’s answer!

Q&A with Sam_Revised 04.15.14

Different Roads to Learning reserves the right to remove or delete any questions and comments deemed to be of an inappropriate, offensive, and discriminatory nature. All answers are intended as suggestions only. Programming decisions and interventions should always be discussed with trained professionals prior to implementation. All programs should be individualized for a particular child or student and overseen by a qualified behavior analyst.

Pick of the Week: EasyDaysies Classroom Management Tools

Say goodbye to spending valuable time making your own classroom organizers. These classroom magnets can easily be used on a whiteboard or in a pocket chart so that students can confidently understand their daily routines in the classroom. With clearly printed text and fun illustrations on each magnet, these classroom organizers will help reduce students’ anxiety while improving cooperation throughout the school day. This week only, you can save 15%* on your order of our newest EasyDaysies Classroom Management Tools for PreK through K and Grades 1 and Up. Just mention or apply our promo code EASYDAYS9 when you place your order with us over the phone or online.

Each set contains 18 magnets measuring 2.5 inches long.

The Kindergarten Kit includes Art, Centers, Circle Time, Clean Up,
Exercise, Exploration, Field Trip, Language, Library, Lunch, Music, Numbers,
Pack Bag, Play Outside, Snack Time, Wash Hands, and 2 blank magnets.

The First Grade Kit includes Art, Assembly, Clean Up, Field Trip, Gym,
Language, Library, Lunch, Math, Music, Science, Silent Reading,
Snack/Recess, Special Guest, Social Studies, and 3 blank magnets.

Don’t forget—this week only, save 15%* when you order the Pre-K/Kindergarten and/or the First Grade sets of EasyDaysies magnetic organizers when you use our code EASYDAYS9 at checkout!

*Offer expires at 11:59pm ET on April 29, 2014.  Not valid on past orders or with any other promotions and offers.  Be sure there are no spaces or dashes in your code at check out!

Safety, Wandering and Emergency Planning for Individuals with Autism: An Interview with Gary Weitzen of POAC and the Autism Shield Program

The safety of individuals with autism is an enormous concern for parents and caregivers across the country. POAC Autism Services consulted with Dennis Debbaudt to pioneer The Autism Shield Program providing safety training for police, fire fighters, and EMTs. More recently, POAC has developed a companion workshop designed for caregivers, teachers, and child study team members.

Sam had a chance to talk with Gary Weitzen, Executive Director of POAC Autism Services. Gary is an excellent source of information and has been incredibly generous and proactive in sharing his experiences and knowledge with the community. POAC has now trained more than 15,000 police officers and first responders on autism recognition and safety. We’re sure you will find Gary’s insight and suggestions exceedingly helpful and applicable to children and adults of all ages.

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Fifteen years ago, Gary Weitzen’s five-year-old son with autism went missing. The first place his parents looked was the lake, because like many children with autism, they knew he was drawn to water. Fortunate to find him in time to save him, this experience and many similar stories Gary would hear over the years, were the impetus for creating the Autism Shield Program. Gary is now the Executive Director at POAC, an organization in New Jersey that provides free resources for the autism community.

“The Autism Shield Program is a comprehensive program really designed to keep our children safe in their schools, homes, and communities,” Gary said. “It originally started training police officers. Multiple FBI studies have shown that if you have autism or any other developmental disability you’re seven times more likely to encounter police than if you don’t have autism.  We’ve expanded it to the current program which also includes firefighters, EMTs, emergency first responders, school nurses, prison guards, and parents.”

One thing that Gary stresses repeatedly is the need for children with autism to learn how to swim.

“I lived with the fact that my son almost drowned. [Fifteen years ago] it was just huge numbers of children with autism drowning. Like every week another child with autism died, another child with autism died. It was overwhelming,” Gary said. “We thought, we have to do something here. We have to let parents and police know exactly what’s going on here.”

Eight years ago, POAC started training police departments on how to respond to emergency situations that involved individuals with autism.

Wandering Child

“I always tell the first responders the same thing: individuals with autism are never lost. Ever. They’re always going somewhere. They didn’t wander out of the house like someone with Alzheimer’s would or even a small child would. Our guys are going somewhere so you want to try to get the information right away about where you think they might be going from the caregiver. If you get that information beforehand, you can try to search there. Always start a search with bodies of water. Always. If the child is missing from a specific location, start with concentric circles out and hit every body of water,” Gary said.

Two more suggestions have been extremely beneficial for law enforcement and first responders in dealing effectively with individuals with autism. The first is to speak in short, direct sentences telling the individual what TO DO instead of what NOT to do. The second is to provide a prompt if the individual is without identification and not giving contact information upon request.

“Let’s say, you ask Charlie his phone number, he doesn’t give you a phone number. Ask his phone number again, but this time prompt it with the area code for that area. ‘Charlie, what’s your phone number, 9-7-3…’ Ninety-nine times out of 100 our guys with autism will finish their phone number.”

Gary also suggests families complete an Emergency Planner and to register with 911 in order to assist with improving safety and emergency response efforts. He urges families to utilize services such as Project Lifesaver.

“[Project Lifesaver] has been in existence for over 15 years. It’s LoJack for our kids who wander off. It was designed for Alzheimer’s patients and expanded to individuals with autism. There are now more individuals with autism that are on it than people with Alzheimer’s,” Gary said. “The success rate in 15 years nationwide: 100%. There’s never been a case of an individual on the program not being found alive ever, ever, ever. Hundred percent success rate. And the average time it takes from the time mom calls up ‘My child is missing’ until the sheriff’s officer has their child in their hands: 14 minutes.”

For individuals who may not tolerate the Project Lifesaver bracelet, Gary recommends creating a rule about cell phones and using the cell phone to ensure the individual is safe.

“If the rule is I always have to have my smartphone with me, in my pants pocket, guess what, they will always have that smartphone with them in their pants pocket. And it doesn’t have to be turned on,” Gary said. “It just has to have power and with iPhones and Androids you can get free apps like the Find My iPhone. There’s also programs out there with Verizon, AT&T, and other providers for $10 a month to put a family locator on the phone, set up a location, so if the phone moves 50 feet away from wherever the location, work, school, home, mom or dad gets a text instantly. The phone is on the move. And you can track it in real time. So there are so many things that are out there that people need to take advantage of and could take advantage of. They just have to be told about them.”

Beyond wandering and encounters with police, POAC also works with fire departments and with parents to increase safety during house fires.

“Very often, individuals with Asperger’s will hide in a house fire. And look, regardless of their age—face it—our guys and girls will re-enter a burning building. This happens all the time. All the time, firefighters come, they save the child, the child’s with mom, with other kids, and in the confusion of the fire, especially if there’s somebody still in the house they’re trying to save, we’ve had so many individuals with autism walk right back into the burning house in front of the police, firefighters, and their family and burn alive and die in the house.”

Gary recommends running fire drills at home with clear rules, such as, “Stand by Mrs. Smith’s mailbox.” It’s also important to identify who will be responsible for the individual with autism during an emergency. But Gary cautions that even with supervision, an individual with autism may be dangerously insistent about re-entering a burning building.

“So, where’s the best place to put a child at the scene of a house fire? Locked in the back of a police car. They’ll potentially scream, bang their head, maybe hurt themselves, but they’re alive. They’re alive,” Gary said. “We have videos of a child wandering off and the firefighter actually trying to hold them and the kid just runs across the street back toward the building.”

POAC has also provided many trainings for both parents and professionals about sexual education for individuals with autism. Gary describes sexual abuse as a major problem for individuals with developmental disabilities that people are afraid to address.

“Unfortunately, the sexual abuse rate with our guys to sexual predators is through the roof. The numbers for females are, close to 70% of females with autism were sexually assaulted by predators. Seventy percent. Seven out of ten of our girls are sexually assaulted before age 18. And the number’s around 40% for males. And I go into why that is, they’re the perfect victim. They don’t understand intent, they don’t understand the social rules.”

“You have to start sexual education with our guys in preschool,” Gary said. “That shocks people when I say that, but Sex Ed in preschool is, ‘What a bathing suit covers no one’s allowed to touch.’ That’s Sex Ed in preschool. So it’s not as scary as people think. But you know when most Sex Ed is taught to individuals with developmental disabilities? After something happens. After someone gets assaulted or after someone masturbated in class or someone touched someone inappropriately. You know, we better do something! No, they’re fifteen! Start early.”

“A big problem for parents of children with autism, and I say this as a parent of a child with autism, is that you’re thinking it’s not your kid. Parents on the lower end of the scale always think, ‘Nothing’s ever going to happen to my child because somebody’s always with them—it’s them kids with Asperger’s who are running willy-nilly off by themselves all the time—those are the ones getting into trouble.’ And then right across the room, the parents with the higher functioning kids think, ‘Well nothing’s ever going to happen to my son because my son tells me everything, it’s those low-functioning kids who can’t speak that everything’s happening to.’ But, it’s happening to all of our kids equally, wherever they fall on the spectrum, and the problem is the parents always think ‘Well, not my kid, it’s somebody else’s.’  No, you’ve got to think, this definitely could be my child so what do I have to do to increase his safety?

POAC continues to provide free workshops and resources to residents in New Jersey. And Gary will continue with that effort for a long time yet. “I always joke that the Irish in me wants stuff to be meat and potatoes. I want it to be real. I want it to be real for the families. I want it to be real for the officers. Any one of our trainings, I want the person to walk away with something that they can use that day to make a child safer.”

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If this story has touched you or you feel you can use it, Gary asks that you please consider making a tax-deductible donation to POAC.

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5 Essential Resources for Your ABA Program

Our focus here at Different Roads to Learning is always on supporting the language and social skills in children on the spectrum through evidence-based interventions. We’re staunch believers in Applied Behavior Analysis and we’ve built our extensive product line around the tools that will best support these programs. As we continue to focus on Autism Awareness this month, we asked our BCBA Sam Blanco to choose five of her go-to resources and tell us a bit about why they’re integral components in her work. This week, we’re are also offering a 15% discount* on these five essential resources from our catalog. Be sure to use our promo code ESSABA5 when you check out online or mention it when you call us at (800) 853-1057.

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When you work with children with autism, you typically are focused on four goal areas: developing language and communication skills, improving social skills, increasing independence in both academic and daily living tasks, and addressing any maladaptive behaviors. While there are a wealth of resources available to help achieve goals in these areas, there are five resources I really can’t live without.

VB-MAPP: The Verbal Behavior Milestones Assessment and Placement Program by Mark L. Sundberg, Ph.D. is essential. It’s easy to use, provides a wealth of information in a relatively short period of time, and allows you to prioritize the unique needs of your particular learner. Beyond the milestones assessment, I love that the VB-MAPP provides a way to assess and measure barriers to learning such as aggressive behaviors, prompt dependence, and defective scanning skill. Finally, as a special educator, it can be difficult at times to know how your student is doing compared to his/her peers in a general education environment. The Transition Assessment portion of the VB-MAPP allows you to assess and measure progress towards specific skills necessary for transitioning to a less restrictive environment.

Language Builder Picture Cards: After the VB-MAPP, these cards are the first investment you should make if you’re working with learners with autism. They are designed to help you teach a wide range of skills including receptive language, expressive language, matching, sorting by category, and identifying feature, function, and class. I use these cards to play games with my learner to practice prepositions (such as hiding a card picturing a frog and having the learner find it by listening to directions like “the frog is under the pillow.”) I also use the cards as prompts for a “What am I thinking of” game. For this game I can look at the picture, then give the learner clues so he/she can guess what I’m describing (such as “I’m green. I have four legs. I hop.”) I then trade turns, and the learner has to look at a picture and provide clues for me to guess what is pictured. All in all, the Language Builder Picture Cards provide so many opportunities for language development you’ll never regret the investment.

Time Timer: I love the Time Timer so much that I actually own the 3-inch, 8-inch, and 12-inch models. For young learners, the clear visual indicator of the passage of time helps prepare them for transitions, complete transitions with greater levels of independence, and begin to understand the passage of time. Older learners use it to manage their time better during tasks, regulate their own behavior, and increase independence in both academic and daily living skill tasks. For all students, it helps facilitate a better understanding of the concept of time. When I taught in the classroom, I used the 12-inch model so that it was clearly visible for all students. I love the 3-inch model for older students who still need the visual tool.

A Work in Progress: When I first began teaching learners with autism, a colleague recommended A Work in Progress to me, and I have come back to it again and again over the years. It provides strategies and a curriculum for addressing the needs of learners with autism, including topics such as self-stimulatory behaviors, sleep problems, eating problems, toilet training, and social play. Most importantly, it describes how to meet the needs of learners with autism in language that is accessible. The curriculum portion of the book describes in detail what a teaching session should look like and how to run discrete trials. It also provides comprehensive instructions for dozens of programs.

Verbal Behavior Targets: Unlike A Work in Progress, this book is not a curriculum, but, as Luckevich states in the introduction, a guide to selecting targets “to meet the unique language goals of each individual child.” Verbal Behavior Targets provides hundreds of targets for each stage of language development (split into 6 chapters: words; multiple words; instructions and questions; sentences; category, feature, and function; and conversation topics. I know there have been many moments in the past, especially when I was first starting out, in which my learner would master a target skill and I would struggle to come up with additional targets. This book helps you continue to push your learner towards independence by providing a vast number of targets in developmentally appropriate sequence. And did I mention she also included data sheets?

As a therapist, finding quality teaching resources can be challenging. There are so many products to choose from and the choice and cost can be overwhelming. The items described above are not only high-quality, but are essential to providing the best possible learning environment. Investing in a few versatile, solid products saves you money over the long term, makes both teaching and prep time more efficient, and helps provide a vast range of possibilities for student learning.

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This week only, you can save 15%* on any of these products on Sam’s list of 5 essential ABA resources by using promo code ESSABA5 when you check out online.

*Offer expires at 11:59pm ET on April 22, 2014. Not valid on past orders or with any other promotions and offers. Be sure there are no spaces or dashes in your code at check out!

Ready Set Play! Strategies for Modifying Games

In continuing our celebration of Autism Awareness Month, we’d like to share with you another article from our very own Sam Blanco, BCBA on how to modify games for learners with autism.  Sam focuses on helping educators and parents understand how to thoughtfully integrate games, toys, and technology for students with autism and other developmental delays, and here she presents a few simple, yet effective, ways of adapting every day games and toys to meet the needs to students on the spectrum.

Ready Set Play! Strategies for Modifying Games
by Sam Blanco, BCBA

Choosing games for learners with autism can be quite challenging, especially when your goal is to provide social opportunities through playing games with peers or siblings. Sometimes you find a game that you think your learner will find highly motivated, only to discover there are aspects of the game that make your learner lose interest quickly. Here are a few tips to help modify games to meet the needs of your individual learner.

One of the easiest and best modifications you can make is to shorten the duration of an activity. Most of the games and activities you will find on this website take 10-15 minutes. For longer activities, I will set a timer and let the learner know that the game will last for 10 minutes (or less, depending on the learner) or allow the learner to choose the duration of the game. Also, though it may feel unnatural, (especially if your learner is engaging with you when he/she rarely does) I try to end the activity when the learner’s interest is at its peak. This will make the learner more likely to request or be interested in the activity in the future.

If the game is too difficult for the learner, you can do some of the steps for your learner. For example, for some of my early learners, I will complete one or more steps in the game Roll & Play. Some of my learners struggle with grasping the cards between their index finger and thumb. I can pick up the card for them, and then continue with the game. This allows us to maintain a quick pace in the game, maintain the learner’s interest, and continue the focus on the skills presented in the game. It’s important to remember that just because you are completing some of the steps, it does not make the game less valuable. Usually, I am practicing grasping objects in other activities and will eventually introduce it into the game, but I want to maintain focus on only 1 to 2 skills when I am teaching through games. Otherwise, the game can become very slow and less motivating for the learner.

Another easy modification is to simply remove some parts of the gameS’Match is a fantastic memory game that helps learners match items based on three components: shape, color, and number. For some learners, I remove the spinner so that I can introduce the game with just two components. I’ll either verbally tell the learner “This time, we’re matching by color,” or I’ll have a textual cue. This way, I can focus on the skills of matching, while making the game easier for learners who might struggle with the skill of remembering three different components of each picture in the memory game. Once my learner has mastered the game with matching by two components, I introduce the spinner and matching along all three components. (There are also games I play with my learners that just involve the spinner, which you can find here.)

Increase your expectations as quickly as possible. For each of my learners, I typically have two categories of games: Emerging and Mastered. With emerging games, the learner still requires modifications, but I am trying to fade those modifications and increase expectations as quickly as possible while still maintaining the learner’s interest and motivation to play the game. With mastered games, the learner is able to play the game as designed with peers or siblings and I can focus on social goals instead of game-related goals.

Games provide a wide array of opportunities to teach academic, non-cognitive, and social skills. Modifications such as those listed above can open up these opportunities for your learner in age-appropriate and fun ways.

Sam Blanco is a Board Certified Behavior Analyst and an ABA provider for students ages 3-12 in NYC. Working in education for ten years with students with Autism Spectrum Disorders and other developmental delays, Sam has developed strategies for achieving a multitude of academic, behavior, and social goals, by organizing resources in an easy-to-use way that also directly connects to data collection and increasing progress in learners with autism. She is the lead contractor for Theatre Development Fund’s Autism Theatre Initiative, working to modify Broadway shows such as The Lion King and Spiderman. She also provides workshops for professionals and parents about assessment, managing difficult behaviors, verbal behavior, and using games and technology effectively in teaching practices. You can follow Sam on Twitter: @SamBlancoBCBA.

Pick of the Week: Early Intervention Resources

It’s a fact that Early Intervention leads to positive outcomes for our children. Understand the key principles of Early Intervention approaches with our two newest additions to our early intervention books, The Early Intervention Workbook and Early Intervention Every Day! These reference books cover evidence-based intervention approaches, as well as the best practices on implementation.  Buy one or both of them this week only and save 15%* by using our promo code DRLEI15 at check out.

The Early Intervention Workbook: Essential Practices for Quality Services was written for current and future early intervention providers of all disciplines who are looking to maximize their efficacy. The entire early intervention process is broken down into seven key principles with detailed tips, activities, and strategies on both what to do and how to do it. The workbook covers referral, initial visits with the family, evaluation and assessment, IFSP development and implementation, and supporting a smooth transition out of EI. The authors strive to empower professionals to make positive change happen on both a personal and systemic level by identifying and focusing on successful evidence-based intervention approaches and providing guidance on actual implementation. This is a comprehensive book for group training or independent work, and a great reference.

Effective early intervention doesn’t stop when the provider leaves a family’s home. For parents and caregivers, Early Intervention Every Day! is a practical sourcebook packed with research-based strategies that demonstrate how take a consistent, active role in supporting young children’s development. Targeting 80 skills in six key developmental domains for children birth to 3, this guide also gives professionals loads of ready-to-use ideas for helping families embed learning opportunities into their everyday routines. The guide empowers families to work on IFSP goals during recurring activities, such as grocery shopping or riding in the car, and to give children opportunities to practice and reinforce new skills throughout the day, along with many other strategies for helping children with developmental delays participate more fully in family life.

Remember – this week only, you can save 15%* on your order of either or both The Early Intervention Workbook or Early Intervention Every Day! by using promo code DRLEI15 when you check out online!

*Offer expires at 11:59pm ET on April 15, 2014.  Not valid on past orders or with any other promotions and offers.  Be sure there are no spaces or dashes in your code at check out!

Interview with Alex Jackman, Creator of “A Teen’s Guide to Autism”

Alex HeadshotOur consultant Sam Blanco recently had the opportunity to talk with Alex Jackman about her  video, A Teen’s Guide to Autism. Alex created this film when she was in eighth grade to educate high school students about autism. You can view the 15-minute film here. For those of you in Florida, the film is going to be showing this weekend at the Palm Beach International Film Festival in the short documentary category. There will be a Q&A afterwards. For more information, click here.

Here is Sam’s interview with Alex about her experience making the film, as well as her thoughts on teaching kids about people with special needs.

Q: What inspired you to make the film?

What inspired me mainly was how people in my school, how little they knew about autism. I realized that a lot of people, because they don’t know what makes people with special needs different, they don’t take the chance to get to know them. I’ve met really incredible people with special needs and I thought it was so unfortunate for both the people with special needs and everyone else who wasn’t getting to know them because they are missing out on this opportunity. I looked up stuff, but I hadn’t seen anything that was geared towards teens about it.

Q: What kind of sources did you use to find the statistics and information you presented?

That was definitely difficult because there are different statistics for the same [information], like for how many people have autism. There were conflicting sources, and with new research, it’s changing. (All information from the film clearly states “as of 2012.”) I used very respectable, well-known, large organizations that I, or groups, like medical groups, that have really researched to get statistics.

Q: If you could narrow it down to one thing, what did you learn from making this film?

That’s so hard.  I think I’ll have to say two.  For kids, I think that teens especially, are so willing to learn and are willing to take in this information they just haven’t been given the opportunity to.  And then, the other thing was just that adults and people are so much more supportive than I thought and it’s not an uphill battle for everything.  People really want to help.

Q: Bullying in schools is a big concern for parents and educators. Do you think providing information about what special needs could have an impact on bullying?

Yes.  Because – well, I do think there are resources, but it’s not taught in schools and it’s not really thrown in their faces, which I kind of tried to do – get teens to watch. Where it’s not something they have to search for, t’s right in front of them… I think that a large part of bullying is misconception and ignorance.  I don’t understand the bullying, of course, but I understand why people would be a little bit confused and would look at someone a little bit differently, if they don’t know why they’re doing something differently from them. If they have never learned, then I can’t blame anyone for being confused and not knowing how to respond.

Q: In the process of making the video, what was one of the more common misconceptions you found high school students had about autism.

Well, one thing I was so surprised by was how many people just didn’t know what it was.  I was really surprised when I thought about it, we never really learned about it in school…You know it’s a big part of my life now, and so I kind of assume that more people know about it, but there were just so many people who didn’t know.

Q: In the process of making the video, you talk with high school students who have autism. What type of questions did you ask them to be a part of the video?

I said, “What’s something cool about you”, “What’s something interesting about you”, “What do you want to be when you grow up”, “Do you have a favorite song.”  Kind of based on their responses, I just kind of started with one question and then I didn’t have anything planned.  I just kind of went off of their answers, and whatever they wanted to talk about, that’s what they talked about.  This was the part I really loved.  It was so much fun.

Q: For me it was very refreshing to see people interviewed who really had autism or Asperger’s and were representing themselves. Do you have any thoughts about depictions of autism in popular culture?

I think there are some good and some bad because, as the quote goes “If you know one person with autism, then you know one person with autism.”  I think that’s hard especially if you don’ t know anything else about it and you don’t have any interactions or knowledge on autism and special needs.  It can be a bit misleading when the media portrays someone who is specifically high-functioning. Then everyone thinks that’s what all people with autism are like or vice versa, if someone’s low-functioning or somewhere in the middle.

Q: How has your video been used?

I’m really excited because it’s been – even though I directed it towards teens – it’s really been shown to people of all ages. People have used it for anti-bullying, people have used it for training, people have used it for class and it’s just been used in so many different ways than I expected. It kind of took on little legs of its own.

Q: When you first started this, what would you have described as your goal with it?

To make a relatable guide for teens letting them know what autism is in a positive way – something that was relatable for teens, and that kind of was very interactive and engaging. I was just thinking locally.  If I could get it shown in like Roosevelt, which was my middle school at the time, if it could’ve been shown in some classes there, that would’ve been kind of what I was hoping.

Q: It sounds still very it sounds like your video is still doing that, but it’s done more. Has the goal changed?

I just want as many people as possible to watch it in hopes that they’ll learn from it.

Q: How do you think this video might be beneficial for parents?

I just speak from what parents have told me.  One parent of a child with autism has told me that their child watched it and said “Yeah, I do that, that’s why I do that.”  And another mom said that the video helped her child understand himself, because he was just kind of coming to terms with his special need and learning a little more about it.  It kind of showed him, helped him to know why he does that and that’s it okay and there’s a reason for it and he’s not just, he shouldn’t feel isolated because of that.

Q: Do you have ideas for further exploring the subject of Autism Awareness in the future?

I’m looking at ways to kind of direct better resources on available information and events because… there are so many amazing events and there are so many people who want to go to these amazing events, but they just don’t know about it.  And I’m also doing something at my school probably starting next year, but I’m kind of getting it organized this year that would be like a peer system – some sort of club after school where kids who are in school who are neurotypical and kids who have special needs get together.

Q: Can you just tell us about the film festival? It’s showing April 6th.

It’s the Palm Beach International Film Festival and it’s going to be in the short documentary category shown with some other shorts – some other short films.  And there is a Q&A afterwards. (The film is showing on April 6th at 12:00. For more information, click here.)

Q: Do you think you’ll work with people with special needs as an adult?

When someone asks me what I want to be, I, you know, if I’m not working and interacting with people with special needs as my job, I’m 100% doing it on the side. It’s definitely going to be a part of my life.

You can also follow the film on Facebook.

Our Autism Journey: One Family’s Story

April is Autism Awareness Month.  We couldn’t think of a more appropriate way to kick things off than by sharing the personal story of someone who inspires and motivates us: Debora Thivierge.  Deb is now a BCaBA, executive director and founder of The Elija Foundation.  But most importantly, she is Jason’s mom.  Her story about her journey and the steps she has taken to not only help her son but support parents and families all over is a real inspiration to all of us in the autism community.  We’re so very proud to share this exclusive article by Deb and hope it resonates with all of you who love someone on the spectrum.

Our Autism Journey

by Debora Thivierge, BCaBA


When my son Jason was diagnosed with autism at twenty months old, I was lucky enough to discover the book “Let Me Hear Your Voice” by Catherine Maurice. Her story became a beacon of hope for me; a light through the early darkness of Jason’s diagnosis. She inspired me and set me on a path to help my son, myself, my family and others on this autism journey.

Hope was a critical component of my family’s survival. The word hope is defined as “the emotional state which promotes the belief in a positive outcome related to events and circumstances in one’s life.” The opposite of hope is despair. I was determined that despair would not define my emotional state, as it would most certainly lead to detrimental outcomes for Jason.

Not only did Dr. Maurice’s personal story give me the hope I needed, but it also gave me scaffolding upon which to build my son’s treatment plan. After reading the book, I realized that there could and would be significant progress if I utilized applied behavior analysis (ABA) as my main course of treatment.

In 2002, my goal as a parent was to educate myself about autism. The more I learned, the more I recognized the need to educate other parents facing the challenges of autism. I decided to start a foundation that would provide information and resources to families and professionals on Long Island focusing on ABA and its efficacy for children with autism.

I decided to name the foundation ELIJA, an acronym for “Empowering Long Island’s Journey through Autism.” ELIJA’s mission is to bring top experts in the field of autism/applied behavior analysis here to Long Island, to give workshops and presentations where they can share their knowledge of current research and treatments, and to help families and professionals advance their skills in implementing ABA programs.

Having these presenters come from all over the country gives parents, professionals and caregivers direct access to information that they might not otherwise have access to. It also gives them the ability to become fluent in the many different tools and techniques of ABA and how to work with their children on a day-to-day basis. Over the past eleven years, the workshops have educated, inspired and instilled hope in thousands of people, including myself. It was and still is so important to me to help parents understand that their role as educator is one of the most crucial components in research outcome data.

I quickly discovered that parents were desperate for information and this kind of support. Having the ELIJA Foundation as a resource gave them an opportunity they wouldn’t have had otherwise – to obtain information directly from autism professionals actively involved in research and education.

The workshops gave parents and professionals the opportunity to network with each other informally. The setting was comfortable and inviting. We would provide lunch, so that participants could focus on meeting, talking, sharing information and experiences and, most importantly, creating lasting connections.

Parents of children with autism often feel extremely isolated, from family and friends who may not understand autism and the challenges they are facing, and from the community at large. ELIJA’s workshops gave opportunities for families to feel connected, to feel not so alone and to find shared interests with other families. When professionals, families and educators feel connected, they tend to be more effective in their implementation of plans and advocacy for the children they work with. These connections bring some measure of relief to parents, who are often exhausted due to lack of feedback and support in the community and in educational settings.

In retrospect, I look back and wonder where Jason would be today, had I not done all this intensive instructional training, and kept on top of his curriculum, especially the goals and the skills that we were teaching him. I knew his long-term outcome would be affected by our choices of what to teach him, and what not to teach him. These choices were sometimes challenging, but I was able to look at the data tables to determine that his biggest deficit was language.

I learned to change my expectations, and give and take in terms of Jason’s progress. I accepted the fact that he may never write neatly or clearly, or be able to complete a 500 piece puzzle or climb a jungle gym or run a marathon. That’s okay. Twelve years after Jason’s diagnosis, he still has autism, but I can’t even imagine where he would be today without our hope, determination, and the intensive interventions we have painstakingly implemented. Our family’s journey through autism continues.

Debora Thivierge, BCaBA, received her BA in Sociology from Hofstra University and is a Board Certified Assistant Behavior Analyst. She serves as the Executive Director and Founder of The ELIJA School and Founder of The ELIJA Foundation. Debora has volunteered her time to numerous Autism groups such as Nassau County’s Department of Health Early Intervention Coordinating Council, New York State Association of Behavior Analysis, Nassau County Autism Coalition run by the County Executive and currently serves as a board member of The Behavior Analyst Certification Board® (BACB®). For the past 13 years, she has been providing advocacy to families and conducted training workshops to promote evidence based instruction for families and educators who have been touched by Autism. She has a 15-year-old son with Autism.
 
Contact
ELIJA
11 Laurel Lane
Levittown NY 11756
(516) 216-5270
www.elija.org 
deb@elija.org

We’re Making Plans for Autism Awareness Month – You Don’t Want to Miss Out!

In honor of Autism Awareness Month, we are gearing up for some exciting activities and projects for you to participate in with us.  Be sure to stay updated with our blog, Facebook, and Twitter for the new information, promotions, and fun activities we have in store all the way through the end of April!

Every week, we’ll be featuring a special guest article, promotion, interactive discussion, or contest that highlights the importance of understanding autism spectrum disorder and how it has affected our individual communities.  If you’re not yet subscribed to our emails, don’t forget to sign up for them to stay updated with all of our plans!

Join us all month long as we do our part to spread awareness on autism, and don’t forget to Light It Up Blue on April 2nd!