Special Playdate

Specialplaydate.com helps parents connect with others to arrange play dates in their local communities. The site enables users to find a playdate for loved ones with or without special needs to create opportunities for them to build social and communication skills while making friends. Check out their site to learn more!

Defining ‘Essential’ Care

 

With healthcare reform underway, this article in the Wall Street Journal highlights the differences between habilitative services and rehabilitative services and how those definitions will impact future insurance coverage. The article specifically looks at coverage for children with Autism and whether early intervention services will be covered or considered reimbursable expenses. More specifically, if services defined as habilitative are indeed covered, families would be entitled to behavioral therapy as well as speech and OT. Opponents claim that the costs would be too high. What are your thoughts on the issue?

Tips for Making a Move More Successful

I’ve recently moved from one apartment to another one only two blocks away.  The funny thing is that it has left me completely discombobulated.  I leave the house improperly dressed for the weather because I have no idea where the hats, scarves and gloves are.  I’ve fallen behind in several tasks and generally just feel a bit ‘out of it’.

This started me thinking about what families with a child on the spectrum most likely experience when moving.  Many children with autism are disrupted by change and any variations in the daily routine can dramatically impact their level of functioning.  It would be important when moving, like most predictable events, to prepare your child ahead of time.   I only have one first hand experience working with a family who moved.  It went pretty smoothly because they were relocating in the same city and had family close by where therapy could take place while the new apartment was being set up. Additionally, this particular child is pretty easy going and isn’t as bothered by change as many of my other students.  However, I have a feeling that this is the exception to the rule rather than the norm.

Clearly, all children are different and this should be taken into consideration when preparing them for the move but in general there are some things to consider for all children.  I would suggest the following ways to try and lessen the stress and help facilitate a smoother transition.

Prepare your child for the move. – This one goes without saying but I’m going to say it anyway.  Just because you think your child might not conceptually understand a discussion about moving doesn’t mean you can’t begin to prepare them for the change.  There are many great children’s books about moving and it wouldn’t be a bad idea to start reading these together several weeks before you move.  You can create social stories about what changes can be expected and even talk about some of the “what if’s” that can be encountered when moving.  If you are moving within the same city or town you can become familiar with the new neighborhood before hand by going to the new playgrounds or any other place you might frequent.  If you are not able to visit the new places you can put pictures of them in a photo book to review and discuss.  You can also count down the days until the move on a calendar so that the arrival of the actual day is predictable.

 

Keep the schedule the same as much as possible. –  This is always a safe starting place when unsure about how your child might react to change.  Whether a holiday or moving to a new apartment if you’re able to keep the schedule the same it will make everyone’s life a little easier.  It might also be helpful to reintroduce a visual schedule for a few weeks surrounding the move if you don’t have one in place already.

 

Keep favorite and comforting items accessible. – If there is a particular toy or item that plays a critical role in your child’s ability to self soothe when upset you will want to make sure you know where it is during the move.  The location will be changing but you want to make sure that it still feels like home by having familiar items available.  It is also a good idea to have the child’s room set up in a similar way in the new house so there isn’t too much of an adjustment in their personal space.  This isn’t a good time to update furniture or purge old toys as you will want to keep things as similar as possible.

Use Positive Reinforcement. – Moving is one giant transition but you can be sure that within that there will be a lot of little transitions and adjustments too.  It’s important to not lose sight of any success your child experiences with these smaller transitions up until and even after the move.  When your child transitions smoothly REINFORCE it!  Reserve a favorite toy or snack as reinforcement for transitions so that it remains powerful and meaningful to the child.  Even if these are transitions that no longer require reinforcement you can use it as an opportunity to emphasize their ability to transition and remind them up the upcoming move.

What is your personal experience with moving?  Were there things that were crucial to your child transitioning smoothly?  Are there things you tried that you would do differently if you had to move again?  What tips would you share with other families who are preparing to move? We would love to hear your story!

Upcoming Conferences on Autism and Special Education

Here are some upcoming conferences on Autism across the country. The conferences cover a broad range of topics for learners at different levels and are geared towards both educational professionals and family members.

Queens College Developmental Disabilities QCDD Conference
March 25, 2011- Flushing, NY (Queens College)

The QCDD Conference is focussed on promoting research and effective services focused in the areas of advocacy, behavioral supports and interventions for people with developmental disabilities. Seminar topics include: Assessing the Effects of Behavioral Skills Training on Adult Teaching Responses, Learner Acquisition, and Learner Disruptive Behavior across Responses and Instructional Skill Sets; Effects of Behavioral Skills Training for Teaching Staff to Conduct Functional Analyses: A Component Analysis.

To register and for more information, visit: https://qcpages.qc.cuny.edu/Psychology/

Connecticut Families For Effective Autism Treatment’s (CT FEAT)
Advances in Autism in Connecticut
March 29, 2011- Hartford, CT (Gray Conference Center)

Attending this CT FEAT conference is an efficient way to keep current on the latest autism treatment developments. The new research often presented in such forums can take a long time finding its way into the mainstream of information. Topics will include: Behavior Management; Generalizing Requesting in Social Situations; Using Video Modeling to Teach Social Skills; Using iPad & iPod Applications for Communication.

To register for this event or for more information, please visit: https://www.ctfeat.org/conferences.htm

Los Ninos Services & Fordham University’s 8th Annual Young Child Expo & Conference 2011
April 7-8, 2011- New York, NY (New York Hotel Pennsylvania)

This event brings together top leaders to provide the latest information about essential topics in early childhood development. Early childhood professionals and parents will learn also about services, resources, and products to help all children reach their full potential. In one unique event, this conference integrates learning about typically developing children as well as those with special needs, including autism.

To register or for more information, please visit www.youngchildexpo.com

National Head Start Association’s (NHSA) 38th Annual Head Start Conference
April 4- 8, 2011- Kansas City, Missouri (Kansas City Convention Center)

This event offers targeted training and educational opportunities that enhance participants’ ability to deliver high-quality comprehensive services and optimize early childhood development by bridging the divide between theory and practice and equipping participants with the practical skills and essential knowledge needed to effectively address the many challenges they face in their professional roles. Carefully selected conference seminars and workshops highlight evidence-based methods and evolving knowledge in the early childhood field and provide an engaging forum for open, thoughtful, and candid discussions on a broad range of topics. Participants learn best practices, effective strategies, and cutting-edge approaches that keep them current with new advances and trends in the field.

To register or for more information on this event, please visit: https://www.nhsa.org/?e=events.detail&event_id=78


Council for Exceptional Childrens’
2011 Convention & Expo
April 25-28, 2011- National Harbor, MD (Gaylord National Hotel & Convention Center)

The CEC 2011 Convention & Expo is one of the largest professional gatherings of the special education community. This event offers you an experience with more than 800 sessions to help you learn the latest in evidence-based practices; explore innovative technologies, products, and services; and network with other professionals working with children with exceptionalities and their families. To register for this event or for more information, visit: 
http://www.cec.sped.org/Content/NavigationMenu/ProfessionalDevelopment/ConventionExpo/

Autism Research Institute’s 2011 Spring Conference (Formerly known as Defeat Autism Now!Conference)
April 28-May 1, 2011- Atlanta, GA (Renaissance Waverly Hotel)

This website is for physicians, researchers, and parents committed to finding biomedical effective treatments for autism. Exhibitors will provide attendees with a broad sampling of products and services that are specifically helpful to the autistic population.

To register for this event or for more information, please visit: https://www.ariconference.com/

Billions of Dollars Allocated for Community Living

According to Disability Scoop, part of the Health Care Reform Act allocates substantial funding to help individuals with disabilities access care within their communities and not in institutions. The money is available to help people with disabilities who are living in institutions transition into the community with services and supports. Read the full article here and let us know what you think.

Autism, Vaccines and Andrew Wakefield

The current media storm surrounding vaccinations and autism is one that, I’m sure, we’ve all been following with great interest. The initial study that linked autism with vaccinations has been dismissed and retracted by the majority of the original authors. Currently, there is speculation that Mr. Wakefield may have falsified data. Many parent advocates are claiming this is a smear campaign being conducted in the name of protecting pharmaceutical companies to the detriment of children.

We know that this is an incredibly sensitive issue with opinions strong on both sides of the fence. We do think it’s an important issue to discuss, respectfully, within our community. For parents, do you believe that the MMR vaccination contributed to your child’s autism? What is your opinion of Andrew Wakefield and his study?

Here’s some coverage of both sides of the issue from CNN, if you’d like to see more on the reporting.

The Holidays Are Here?!

The fast approaching holiday break can be stressful with therapists away, a school break and big changes in your child’s schedule making it difficult to maintain a routine.  Why not use the time to expand general knowledge and play skills?

Try to maintain the schedule as much as you can by replacing therapy or school time with activities based on one particular theme.  Take space travel and astronauts as an example and incorporate activities to address all developmental domains and have different “sessions” throughout the holiday vacation.  Depending on the length of the vacation you might choose more than one theme.

I like to start by using short videos to introduce a play schema.  This gets everyone excited about playing by becoming familiar with the specifics of the theme and making it “real”.  You can find videos on the Difflearn YouTube Channel.  Like this one showing a space shuttle lift off!

Next, you could use materials relating to the theme to work on building cognitive skills and expanding the general knowledge base about the topic needed for play.

Here are some ideas:

Parts of Whole – given a picture of an astronaut or space shuttle can the child identify parts both expressively and receptively?  This becomes important when expanding the comments used  during play.  A couple of examples include, “Don’t forget your helmet” or “I think the rocket blasters are broken, let’s fix them!”

Wh Questions – after reading short passages of a book or informational page related to the theme present various Wh Questions for the child to answer.  This improves comprehension and listening skills as well as providing more content for the space play.  You would be surprised at how well a child can do given a new and motivating topic!

Other sessions can include coloring sheets related to the theme you have chosen.  This provides an opportunity to work on task completion, graphomotor and fine motor skills.  You can find countless coloring sheets with a simple search on the internet. Like the ones found here: coloring sheets.

Additionally, you can have an arts and crafts “session” and use up some of those holiday gift boxes and gift wrap tubes to make helmets or space shuttle controls.

Last, it’s time to play!  Gather the whole family or some friends, line up chairs for the space shuttle and put on your gear.  Watch as all the information shared during your “sessions” comes alive during play!

Happy Holidays to All!

Traveling for the holidays? Here are some tips.

Traveling for the holidays can be stressful with long lines, delays and unanticipated changes to plans. The Autism Speaks blog has a helpful post that gives parents simple strategies and tips for preparing both the individual with autism and airline personnel so that the trip goes as smoothly as possible. Check out the section on the Autism Speaks site called Travel Tips for Individuals with Autism and Their Families for even more information. Kathy Labosh has written two practical booklets that are filled with hints and tips on how to travel both in the community and to Florida with a child with autism.

Do you travel or fly with your child? If so, how do you prepare? Any helpful hints for other parents who are planning a trip?

 

Congress To Consider National Special Needs Parent Day

A resolution calling for the establishment of a national day to recognize the parents of children with special needs is expected to be considered as early as Tuesday in the House of Representatives. Parents, you deserve this and so much more for all that you do.

There is some criticism of this resolution claiming that a day of recognition isn’t what’s needed as much as research, financial support and better services. What do you think?

From Stim to Power Reinforcers

We’ve been through a ton of stimming.  Pin wheels, spinning toys, pouring sand, watching water move from container to container were all familiar stims at our house.  

 The only one that really struck fear in our hearts was flipping the pages of magazines.  At first it was only a particular kind of magazine, but later, any would do.  Flipping the pages of a magazine always led to a little tear, then a lot of tearing, which led to trying to fix the pages (by us), which led to hopeless fixes and “help me, please” and then aggressive behavior.   Some of you knew where this was leading at “flipping the pages”.

 This behavior started very early, at age 3.  We were unable to control the behavior.  Instead by the time she was 5, we wiped out magazines, hid books and reams of paper, everything flippable was gone from the house.  We never read a newspaper, never looked up a recipe in a cookbook and kept computer paper high up on the shelf.

Many years, later, that same obsession is a power reinforcer.  The magazine is controlled under specific circumstance, perhaps a haircut or a difficult medical treatment.
The whole premise of Applied Behavior Analysis is working to get what you want. As Joanne Gerenser used to say, “Most people work for the most powerful reinforcer: Money!”

I wish we had understood and used the concept of reinforcement at the beginning and used it to the family’s advantage.  I was too scared to introduce it but braver parents can use those stims and obsessions to shape behaviors and make life smoother by creating the right delivery of rewards.

– Julie