Help Line for Families with Special Needs Kids

The Mom2Mom help line was recently launched by the autism center and behavioral health care unit of the University of Medicine and Dentistry of New Jersey. The program seeks to offer caregiving moms peer counseling, clinical assessments and the resources and referrals they might need to locate services. Its founders recognize, however, that sometimes what a mother might need most is to talk to someone “who has walked a mile in their shoes,” said Cherie Castellano, program director for UMDNJ Behavioral Health Care.

This sounds like a great resource. With the preponderance of support available online, it’s nice to know there’s still a voice that understands a phone call away.

 

Enter to win a free iPad from the HollyRod Foundation

The HollyRod Foundation is raising money to provide free iPads to families in need. Applications are being accepted until December 31, 2010. In trying to donate to the those in the most need, the guidelines stipulate that the child is non-verbal or minimally verbal and that the family falls below a certain income level. We applaud the HollyRod Foundation for trying to make a real difference in the lives of families in our community.

Traveling for the holidays? Here are some tips.

Traveling for the holidays can be stressful with long lines, delays and unanticipated changes to plans. The Autism Speaks blog has a helpful post that gives parents simple strategies and tips for preparing both the individual with autism and airline personnel so that the trip goes as smoothly as possible. Check out the section on the Autism Speaks site called Travel Tips for Individuals with Autism and Their Families for even more information. Kathy Labosh has written two practical booklets that are filled with hints and tips on how to travel both in the community and to Florida with a child with autism.

Do you travel or fly with your child? If so, how do you prepare? Any helpful hints for other parents who are planning a trip?

 

Congress To Consider National Special Needs Parent Day

A resolution calling for the establishment of a national day to recognize the parents of children with special needs is expected to be considered as early as Tuesday in the House of Representatives. Parents, you deserve this and so much more for all that you do.

There is some criticism of this resolution claiming that a day of recognition isn’t what’s needed as much as research, financial support and better services. What do you think?

Holiday Gifts for Children on the Spectrum

During holiday gift giving, no one wants to present their child with a curriculum wrapped with a big bow. We have loads of wonderful toys that are engaging and fun. We’ll keep it to ourselves that they’re educational. Here are some of our favorites which are great suggestions for friends and grandparents who might be stumped by what to get children on the spectrum for the holidays.

The Shape and Color Coaster has always been a kids’ favorite. The brightly colored pegs and pieces are engaging and fun.

The 3D Feel & Find is a high-quality wooden toy. You deal out the tiles and then children reach into the bag to pull out the corresponding wooden shape, using only their sense of touch. There’s fun for everyone to play together.

Every child loves pretend play. The Coin-u-Lator is an interactive coin-counting calculator that comes with addition and subtraction games. Kids will love pushing the large buttons and hearing the sounds of coins dropping into a drawer.

Puzzles are great for children at all stages of development. They’re fun on a rainy day (and develop key motor and spatial reasoning skills!)

Mighty Mind is another favorite, especially for children who love a challenge. The design tiles and 30 tangram-like design cards that become increasingly more challenging as you progress, developing creativity, visual and spatial relationships.

Have we left out anything that you think might make a good holiday gift?

Thinking About All the Parents Out There…

With the holidays approaching we all know that gift giving will soon be in full swing.  This undoubtedly means that your families will be generously bestowed with electronic cause and effect toys.  These types of toys help to stimulate development as your child discovers the function of the toy and how to elicit certain responses from the object.  Children with special needs tend to have a longer relationship with these types of toys as they often serve as powerful reinforcers, meet ongoing sensory needs and continue to provide opportunities to address language and motor development.  Additionally, it may take a special needs child longer to master this type of play before moving onto more imaginative and creative play.  What I’m getting at is that these toys are going to be in your house longer and some of them are LOUD.  So when I came across the following post on Apartment Therapy the other day it jumped out at me as a piece vital information for all of you special needs parents out there.  We are always thinking about adaptations for toys and games for the kids but what about the parents?  A former sound engineer for children’s sound books shares a secret on how to turn down the volume on these toys.

Check it out and Happy Holidays!

Bringing Down the Volume on Electronic Toys

How and When to Help?

So, I’ve been falling a little behind lately with my blog posts.  The main reason is that I’ve been feeling overwhelmed.

My current caseload is four very different children and their even more dramatically different families.  I’ve been doing this work a long time and can easily move from case to case implementing programs ranging from simple gross motor imitation to reciprocal conversation to complicated play schemas involving a peer.  In fact, I’m feeling invigorated by the current challenge of having children who are in such different places developmentally.  When it comes to the kids, right now I’m bringing my ‘A’ game.

The thing that is leaving me feeling a bit discouraged is how difficult it can be to present the same information to different parents and caregivers especially when it comes to family training sessions.   One parent wants me to be a straight talking express with no holds barred.  Another needs me to tip toe around sensitive issues while modeling techniques and strategies.  This discrepancy has left me feeling confused and frustrated.  I haven’t felt that it was an appropriate blog topic because  quite frankly, the last thing parents need is to listen to me complain about not always knowing when and how to help them.

But then I started thinking… who better to ask than the great group of people we have reading the Different Roads to Learning blog?  I would love to hear from parents and professionals alike about their successes and failures regarding communication with each other.  Tell us your stories!

At the Age of Peekaboo, in Therapy to Fight Autism

This is a really interesting article in the NY Times about early autism diagnosis and the steps taken by one particular family. The treatment is based on a daily therapy, the Early Start Denver Model, that is based on games and pretend play. Do you think your child’s outcome would have been effected if they had received a diagnosis by age two?

From Stim to Power Reinforcers

We’ve been through a ton of stimming.  Pin wheels, spinning toys, pouring sand, watching water move from container to container were all familiar stims at our house.  

 The only one that really struck fear in our hearts was flipping the pages of magazines.  At first it was only a particular kind of magazine, but later, any would do.  Flipping the pages of a magazine always led to a little tear, then a lot of tearing, which led to trying to fix the pages (by us), which led to hopeless fixes and “help me, please” and then aggressive behavior.   Some of you knew where this was leading at “flipping the pages”.

 This behavior started very early, at age 3.  We were unable to control the behavior.  Instead by the time she was 5, we wiped out magazines, hid books and reams of paper, everything flippable was gone from the house.  We never read a newspaper, never looked up a recipe in a cookbook and kept computer paper high up on the shelf.

Many years, later, that same obsession is a power reinforcer.  The magazine is controlled under specific circumstance, perhaps a haircut or a difficult medical treatment.
The whole premise of Applied Behavior Analysis is working to get what you want. As Joanne Gerenser used to say, “Most people work for the most powerful reinforcer: Money!”

I wish we had understood and used the concept of reinforcement at the beginning and used it to the family’s advantage.  I was too scared to introduce it but braver parents can use those stims and obsessions to shape behaviors and make life smoother by creating the right delivery of rewards.

– Julie

Is That You On TV?

No, I know.  In all seriousness, it’s Team Braverman from the NBC program “Parenthood”.  One of the show’s main storylines portrays a family whose son is diagnosed with Asperger’s Syndrome.  This image is from the episode where the family participates in an Autism Speaks walk.  The plot revolves around the struggle a family faces when they are deciding how they should tell their child about his or her diagnosis.

I have been hooked on this show for the last few weeks.  I find the way ‘Parenthood’ tackles difficult topics to be touching and feel that it is an realistic account of a family ‘behind the scenes’.  I spend a lot of time with families dealing with many of these same issues and can only imagine being in their shoes.  From where I stand this show seems to be a powerful and accurate portrayal of life with a child with Asperger’s.  However, I’m curious how parents, grandparents and other clinicians are reacting to the program.