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Several years ago, I was working with a 6-year-old boy we’ll call Terrence. Terrence was diagnosed with autism. He was a very playful child who was generally good-tempered, enjoyed playing with trains and watching TV, and posed few difficult behavior issues for his parents…until the day there was construction on their walk from the grocery store to their apartment and they decided to take a different route home. What happened next is what most people would call a full-blown meltdown: Terrence dropped to the ground, screaming and crying, and refused to move.
Many of the parents I work with have a similar story when it comes to their child with autism and an unexpected change in the routine. The change varies: the favorite flavor of fruit snacks is out of stock at the store or the babysitter greeted the child at the bus instead of the parent or they grew out of the coat they wore the past two winters… In fact, it can be difficult to anticipate exactly what specific routine may be a trigger for your learner. This is precisely why building variability into the routine can be helpful.
Here are a few things to consider:
First, think about the routines that are the most likely to be interrupted. Make a list of these so you can begin thinking about how to address those issues.
Second, work with your team (whether that means family or practitioners that work with your learner) to select 2-3 routines to focus on first.
Discuss how those routines would most likely be interrupted. For instance, a favorite TV show may be interrupted during election season or you may have a family function when the TV show is aired. In teaching your learner to be flexible with changes in routine, you will contrive changes that are likely to occur to give your learner quality practice.
Plan to vary the routine. Essentially, you are setting up the change in routine, but you will be prepared in advance to help your learner behave appropriately. (You’re much more likely to experience some success in this scenario than you would be if a change in routine occurs unexpectedly and/or last minute.)
Give your learner a vocabulary for what is happening. I teach many of my students the term “flexible.” I might say, “I appreciate how you’re being flexible right now” or “Sometimes when plans change we have to be flexible. This means…”
Reinforce appropriate behaviors related to flexibility! You want to be clear when they’ve made an appropriate, flexible response. In the planning phase, you can discuss what appropriate reinforcers might be for the routines you are targeting.
If you build in variations in routine and teach your learner some strategies for being flexible, you and your learner are much more likely to be successful in navigating unexpected changes.
Sam is an ABA provider for students ages 3-15 in NYC. Working in education for twelve years with students with Autism Spectrum Disorders and other developmental delays, Sam utilizes strategies for achieving a multitude of academic, behavior, and social goals. She is also an assistant professor in the ABA program at The Sage Colleges.
This week’s post comes to us from Stephanny Freeman, PhD and Kristen Hayashida, MEd, BCBA, and Dr. Tanya Paparella, our partners on the Play Idea Cards app. Play Idea Cards is a full curriculum on teaching play – right in the palm of your hand! Check it out on the Apple App Store!
Most adults think of toy play as a natural part of childhood. When my daughter was born, we were showered with plush animals, tea sets, and dress up clothes for her to use in play. But what happens when the child does not find toy play to be natural?
Many children on the autism spectrum use toys non-functionally or repetitively. When I ask parents of children with ASD to tell me about their child’s play they often say “he doesn’t know how to use toys appropriately!” They then tell me about how the child may spin the wheels on the car while staring at the rotating objects. They tell me about the specific scripts the child uses to carry out a routine with their toys and subsequent tantrums if the routine is disrupted. Parents notice how this deficit in play impacts their ability to engage with peers or occupy their free time appropriately.
Symbolic play occurs when the child uses objects or actions to represent other objects or actions. For example, a child using a doll as their baby and rocking the doll to sleep is an act of symbolic play. The doll is not alive, but the child is representing a baby. This skill is a core deficit in children with ASD. This means that they do not “naturally” or “easily” acquire the ability to use toys to represent other things. Development of symbolic play is crucial in early development and is tied to numerous subsequent skills:
Language: symbolic play is highly correlated to language development. This means that the better the child’s ability to play representationally, the better the child’s language skills. There is also emerging evidence to support symbolic play as having a causal relationship to language. [Explanation].
Social Development: as neurotypical children continue their learning about symbolic play and through symbolic play, children with ASD often struggle to relate to their peers and understand their play schemes. Some children with ASD may only engage peers in physical play (instead of symbolic play) or they may end up playing alone using their familiar play scripts.
Perspective-taking: symbolic play allows the child early opportunities to take on the perspective of another being. If a child pretends to be a pirate, they being to talk and think of things a pirate might want/do. This early practice with perspective-taking allows the child to use this skill when interacting with peers and adults.
Meta-cognition and Problem Solving Skills: meta-cognition is the ability to think about one’s own thinking. This is an essential skill when solving problems and planning one’s time. During play kids plan, organize and cognitively process through obstacles and mishaps with their toys.
Emotional Development: through symbolic play, children can practice expressing emotion through the scenes they create. There is also some evidence suggesting that this early practice contributes to emotion understanding and empathy.
Clearly, children need play for growth and development. However, for children with ASD the development of symbolic play may be difficult and, even thought of as WORK!
Given the numerous skills that come out of symbolic play, we urge parents of children with ASD to consider the importance of toy play. Dedicate time and effort to engage your child in symbolic play. It is usually not easy at first! It might have been decades since you picked up an action figure and used him to fight off bad guys, but practice with your child.
Parents know that it is part of their job to help their child learn to read and do basic math. They would not let their child escape those tasks because they are hard. Please consider PLAY to be just as important and necessary for the child’s development. Even if it is work at first, insist the child play with you and in time, improvements may come not only in toy play but also in so many other key areas of development.
Jarrold, C., Boucher, J., & Smith, P. (1993). Symbolic play in autism: A review. Journal of
Autism and Developmental Disorders, 23(2), 281-307.
Ungerer, J.A. & Sigman, M. (1981). Symbolic play and language comprehension in autistic
children. Journal of the American Academy of Child Psychiatry, 20, 318-337.
About The Authors
Dr. Stephanny Freeman is a clinical professor at UCLA, a licensed clinical psychologist, and Co-Directs the Early Childhood Partial Hospitalization Program (ECPHP). For 20 years, she has educated children with ASD and other exceptionalities as a teacher, studied interventions for social emotional development, and designed curriculum and behavior plans in school and clinic settings.
Kristen Hayashida is a Board Certified Behavior Analyst at the UCLA Early Childhood Partial Hospitalization Program (ECPHP). For the last 10 years she has served as a therapist, researcher and educator of children and families living with autism spectrum disorder through the treatment of problem behavior.
Dr. Tanya Paparella is a specialist in the field of autism having spent more than 20 years in intervention and research in autism. She is an Associate Clinical Professor in the Division of Child Psychiatry at UCLA, a licensed clinical psychologist, and Co-Director of UCLA’s Early Childhood Partial Hospitalization Program (ECPHP), an internationally recognized model treatment program for young children on the autism spectrum.
This week’s blog comes to us from clinical psychologist Lauren Elder and was originally posted on Autism Speaks as part of their Got Questions? series.
“Our son, age 9, was recently diagnosed with autism. He knows something’s up, but we’re not sure how to explain. Advice?”
Yours is a difficult situation shared by many parents. Children need to understand what’s going on, but the discussion needs to be appropriate for their age and level of development. Your openness will help your child feel comfortable coming to you with questions.
I recommend a series of ongoing conversations rather than a one-time discussion. Here are some tips for starting the conversation and preparing some answers for questions that your son may ask:
Explain autism in terms of your child’s strengths and weaknesses
You may want to focus on what he’s good at, and then discuss what’s difficult for him. You can explain that his diagnostic evaluation provided important information on how to use his strengths to meet his challenges. Focus on how everyone has strengths as well as weaknesses. Give some examples for yourself, his siblings and other people he knows.
Provide basic information about autism
Depending on your son’s maturity and understanding, you may want to continue by talking about what autism means. (See our “What Is Autism?” webpage.) You want to give your child a positive but realistic picture.
It may help your son to hear that autism is common and that there are many children like him. This can open a discussion about the strengths and challenges that many children with autism share. You might likewise discuss how individuals with autism tend to differ from other children.
For instance, you might explain that many children with autism are very good at remembering things. Some excel at building things or at math. Also explain that many children with autism have difficulty making friends and communicating with other people.
Don’t make everything about autism
It’s important to emphasize that your son’s autism-related strengths and challenges are just part of who he is and why you love him. Be sure to point out some of those special qualities that have nothing to do with his autism. This will help your child understand that autism is something that he has, not the sum total of who he is.
Assure your child of support
Explain to your son why he’s receiving the services he’s getting. For instance, you could tell him that he sees a speech therapist to help him communicate more clearly, or that he’s seeing a behavioral therapist to improve how he makes friends. Help him understand how you, his therapists and his teachers all want to help him. You can point out that we all need some help to become the best we can be. Some children need extra help learning to read. Some get very sad and need help in that department, etc.
Expect to repeat these conversations!
All children – and especially those with autism – need to hear some information multiple times. This doesn’t mean he doesn’t understand. what you’ve told him. Rather, revisiting these topics can be an important part of his processing the information.
Find role models and peers
It’s important for children with autism to spend time with typically developing peers. However, for children your son’s age and older, it can be a wonderful experience to spend time with other children on the autism spectrum. Consider enrolling your son in a play group or social skills group specifically for children with autism.
