Tag Archives: Autism Awareness

Tip of the Week: Recognizing Fad Autism Treatments

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Learning that your child has autism is incredibly overwhelming. You’re under intense stress to make the best decisions possible for your child, and to do so quickly. Add to the fact that autism is a popular topic in the news and social media, so tips and quick fixes frequently show up in headlines and news feeds. Autism is considered to be a fad treatment magnet, and while some of the fad treatments are ineffective, others are flat out dangerous. How is it possible to parse through all this to find reliable information? Here are a few tips to help you out:

  1. Avoid products or organizations that promise a cure or rapid progress. All children respond to intervention at different rates. There is no known cure for autism, and there is no “quick fix” either.
  2. Avoid products or organizations that use scare tactics. Anyone who is trying to scare you into using their products or services does not have your best interest at heart. Instilling fear in parents can make it more difficult to make knowledgeable choices and increase the pressure already felt. Scare tactics are generally used to encourage you to make a snap decision, often at a high monetary cost.
  3. Avoid products or organizations that utilize subjective testimonials instead of data-driven science to measure progress. Testimonials may be compelling, but without scientific research it’s impossible to know what actually caused progress. Research should be completed that illustrates an intervention or treatment is directly linked to progress.
  4. Avoid products or organizations that advertise easy solutions which don’t require a professional’s help. Many of the behaviors presented with autism are incredibly challenging. Approaching those issues without the assistance of a trained professional can be detrimental or potentially dangerous for your child, especially when your child exhibits self-injurious behaviors.
  5. Avoid products or organizations that do not measure progress for the intervention being used. It should be very clear what the expected outcome of a product or treatment is, as well as how it will be measured. Relying on informal reports from either parents and/or teachers does not supply valid information about the effectiveness of the product or treatment.
  6. Be wary of treatments that require “faith” to work. If a treatment is not working, it is not because you didn’t believe in it, it’s because something in the treatment needs to be changed to meet the unique needs of your child.

So where can you find valid information? The Association for Science in Autism Treatment is a reliable source for up-to-date information about the many types of treatment available for individuals with autism. The website is packed with useful information, but you may find “Questions to Ask Marketers of Autism Interventions” especially helpful as you make decisions about your child’s treatment. You may also want to pick up Sabrina Freeman’s book, The Complete Guide to Autism Treatments: A Parent’s Handbook: Make Sure Your Child Gets What Works!

 

WRITTEN BY SAM BLANCO, MSED, BCBA

Sam is an ABA provider for students ages 3-12 in NYC. Working in education for ten years with students with Autism Spectrum Disorders and other developmental delays, Sam has developed strategies for achieving a multitude of academic, behavior, and social goals. Sam is currently pursuing her PhD in Applied Behavior Analysis at Endicott College.

Upcoming New York Family Workshop & Support Group Events

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Parent to Parent New York, Inc. will be hosting a free workshop and several family support groups throughout March that you won’t want to miss! Their free workshop “Special Education Mediation: A Collaborative Option for Resolving Disputes” aims to help parents and school districts become more effective partners, offering attendees an opportunity to look at conflict differently, learn about resources that enable people to communicate more effectively, and meet with representatives from organizations to assist parents and schools with communication issues.

Special Education Mediation: A Collaborative Option for Resolving Disputes
10:00am–12:00pm EST
Thursday, March 19th, 2015
Institute for Basic Research
Parent to Parent NY, Inc.
1050 Forest Hill Road
Staten Island, NY 10314

Those who wish to attend should RSVP by calling (718) 494-4872 or emailing SIPTP@aol.com.

They will also be hosting several support groups throughout the rest of the month. The Aspergers, Mothers, and Sibling Support Groups will also be held at the Institute for Basic Research. The Fathers Support Group will be held at the Page Plaza Diner in Tottenville, Staten Island. Please find the times and dates below for each support group:

Aspergers Support Group
10:00am–12:00pm EST
Wed, March 4th & March 18th, 2015

Mothers Support Group
10:00am–12:00pm EST
Wed, March 11th & March 25th, 2015

Fathers Support Group
6:30pm–9:00pm EST
Wed, March 11th, 2015

Siblings Support Group
6:30pm–8:00pm EST
Fri, March 6th & March 20th, 2015
RSVP is required, by calling (718) 494-4872.

For more information about these parent support groups, please call (718) 494-4872 or send an email to Parent to Parent New York at SIPTP@aol.com.

Valentine’s Day Craft Ideas for Kids

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Valentine’s Day is coming up, so we thought we’d share with you a few craft ideas we came across online to help you add a little lovable learning into your weekend with your child. These crafts and activities are great for practicing skills in fine motor development, matching and sorting, sequencing, identifying emotions, and more!

Valentine’s Day Bingo

These Valentine’s Day-themed Bingo cards, created by Kristy over at Libbie Grove Design, are a great way to get kids excited about learning about numbers. Download and print them out for free on regular A4 paper to get started.

 

Valentine’s Day Same or Different

This packet, designed by speech & language pathologist Jen, contains eight different worksheets that target identifying items that are the same and items that are different.  There are two color worksheets and two black and white worksheets that target identifying items that are the same in a row.

Hearts-Themed Missing Letters and Matching Numbers Activity

Sherine at Trial & Error Mama came up with these adorable hearts-themed activities to practice spelling, counting, and matching with her daughters. For some inspiration, check out the different ways she got crafty on Valentine’s Day with her girls.

Valentine’s Day Feelings Book

Valentine’s Day is the day to show your love to those you care about. This Feelings Book idea by Ruth is a great way to help kids identify and talk about feelings. Download the Feelings Book template for free here!

 

Let us know how you’re getting crafty this Valentine’s Day with your student or child!

 

TDF Presents an Autism-Friendly Performance of “Aladdin”

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Mark your calendars! On March 8, 2015, the Autism Theatre Initiative of the Theatre Development Fund will present an autism-friendly performance of the acclaimed musical comedy “Aladdin” at the New Amsterdam Theatre in New York City.  Tickets will go on sale on Monday, February 9th, 2015 at 12:00pm EST.

All tickets for this special performance are being specially priced to ensure that as many individuals, as possible, affected by autism, sensory and communication disorders, or learning disabilities, are able to experience this extraordinary production. This show will be performed in a welcoming, supportive environment for individuals on the spectrum, with sensory and communication disorders, or learning disabilities. Slight adjustments to lighting and sound will be made for the performance. In the downstairs lobby, there will also be a break area staffed by specialists in the field, if audience members need to leave their seats during the show.

For more information about this performance, visit the Theater Development Fund’s website.

Tip of the Week: Read Books from the Autistic Perspective

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If I were to describe my job in one sentence, it would be this: My primary goal is to increase the independence of my students in ways that are meaningful to them and to their families. With that goal in mind, it makes sense that I would seek out input from my students and their families, but also seek out writings by people with autism, Asperger’s, and other developmental delays in order to gain a comprehensive picture of needs, desires, and issues of which I may be unaware.

Sometimes a book or article written by an individual with autism hits the news in a big way. I encourage you to read more than one book, because you’ll quickly find that each individual’s experiences and personalities are quite different. It is not helpful to read the perspective of one person with a developmental disability and apply it to all people with developmental disabilities, but this frequently happens with autism. Here are a few resources you may want to check out:

 

The Reason I Jump by Naoki Higashida – This book was all over the news last year. Set up as a series of questions and responses, Higashida answers all sorts of questions related to autism. His writing is very direct and he shares a lot about the emotions he feels but is unable to convey.

 

 

Any books by Temple Grandin – Temple Grandin is a force in the autism community and has provided a wealth of resources. You can read some of her early work, such as Thinking in Pictures to get a view inside the mind of an individual with autism, but I also have great appreciation for her later work as an advocate for people with autism, such as Different…Not Less.

 

 

Episodes by Blaze Ginsberg – This is one of my all-time favorite books. Ginsberg sets up his life experiences and relationships as if they were different seasons of television shows. He presents his teen years as if you were flipping through the channels, seeing different episodes of his life. He even has songs for each episode!

 

 

Finding Kansas by Aaron Likens – This one is unique because it is written by a man who was diagnosed with Asperger’s in his 20s. Likens is eloquent in his use of metaphor to help clearly define aspects of his behavior.

 

 

www.wrongplanet.com – Wrong Planet is a community forum for individuals with autism and their families. You will see a wide range of questions and opinions here. It also serves as a forum for individuals with autism to express their feelings about topics such as whether or not they prefer people-first language, how people with autism should be depicted on TV, legislation related to autism, and more.

WRITTEN BY SAM BLANCO, MSED, BCBA

Sam is an ABA provider for students ages 3-12 in NYC. Working in education for ten years with students with Autism Spectrum Disorders and other developmental delays, Sam has developed strategies for achieving a multitude of academic, behavior, and social goals. Sam is currently pursuing her PhD in Applied Behavior Analysis at Endicott College.

Autism Speaks Partners with Simon Malls to Feature a Caring Santa Program

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We’re delighted to share that Autism Speaks has partnered up with Simon Property Group, Inc. and the Noerr Programs Corporation to bring children and their families a new Caring Santa program. On Sunday, December 7, 2014, for two hours prior to the mall opening, children with special needs will have the opportunity to meet Santa personally in a sensory-friendly environment set up in 120 different Simon Malls across the country.

Reservations to meet their Caring Santa’s at Simon Malls are going fast, so book your spot today to meet Santa in a fun and sensory-friendly environment at this private event just for families with special needs. For a full list of locations and dates of the Caring Santa event, visit www.simon.com/caring-santa.

Make a Reservation with Caring Santa!

Special Education Students Learn How to Share and Prepare for Thanksgiving

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(SGVN/Staff photo by Leo Jarzomb/SWCITY)

In the spirit of the Thanksgiving holiday, we thought we would share this wonderful report we came across on learning how to prepare for Thanksgiving festivities at Dexter Middle School in Whittier, CA. With weeks of preparation for their annual tradition, sixth-, seventh-, and eighth-graders in this school’s special education program learn about manners, responsibility, budgeting at the grocery store, and treating others with respect, especially at the dinner table.

How are you preparing for Thanksgiving with your special student this year? What’s your annual tradition?

Click to read: Thanksgiving comes early for Dexter Middle students

6 Tips for Preparing for a Smooth Thanksgiving Celebration

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Holidays can be challenging for everyone in the family. Your to-do lists get longer, your routines are switched around, and all the little stresses can be especially difficult for your child with autism. Here are a few tips to ease the difficulties related to Thanksgiving.

Tell. Prepare your child for who and what they will see at Thanksgiving. This may include creating a social story or showing photos of people your child does not know or see often.

Help. When possible, have your child help out. This may include prep activities such as helping with decorations or measuring ingredients for a recipe, but it could also include giving your child a job, such as answering the front door or setting the table.

Access. Be sure your child has access to foods he or she will eat and to a designated quiet space for breaks. It’s helpful if other guests or family members understand where this space is and its purpose.

Notify. Inform guests who aren’t familiar with your child or with autism about what to expect and how to best interact with your child.

Keep it fun. Add in a couple of activities during the day that you know your child really knows. This may include family games or traditions.

Schedule. Provide a schedule of the day’s events for your child so they will know what to expect. This can include a visual schedule or a written schedule.

Lastly, remind your child why you are thankful for them and enjoy your holiday!

Tips for Costumes & Trick-or-Treating for Kids on the Spectrum: Getting Ready for Halloween

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October means it’s time for trips to pumpkin patches, ghastly goblin decorations, and candy corns galore. So what better time than now to share this wonderful guest article about getting ready for Halloween by BCBA Claudia Mármol.  Claudia shares with us a few tips on how to make dressing up and trick-or-treating as seamless as possible for a child on the spectrum.

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Wouldn’t it be fun to have your child dress up in their favorite TV character or have them pick up their costume for this Halloween? Most parents would answer “Yes” to the above question, as we all dream of having our child walk down the streets and go trick-or-treating. Thus, as much as children enjoy this holiday, so do adults. However, we have to keep in mind that children with autism and related disorders have sensitivity to certain stimuli such as textures, colors, smells, loud noises, and such that make wearing a typical Halloween costume difficult.

Below, you will find some helpful tips to keep in mind before we try to make our child wear all sorts of costumes, masks, make-up, wigs, and the like:

  • Try to avoid masks or anything on their heads: Since children dislike certain textures, their costume should not include anything that will disturb their head and/or skin (such as masks, make-up and/or excessive facial paint, big hats). These also become uncomfortable to carry, fade after a few hours, and can even be a little scary for our little ones, so avoid them as much as possible.
  • Make it comfortable: Whether your child will be trick-or-treating or not, make sure that the length of the costume (both legs and arms) is not too long for him/her as to impede their ability to walk and run with their friends. Also, keep in mind the material of the costume and the weather (i.e., avoid materials that will make your child sweat). I would suggest having a cotton costume and having a back-up plan, such as a Halloween-inspired shirt in case your child does not want to remain in his/her costume
  • Try it on before it’s that special day: In order to avoid a meltdown on Halloween night, have your child wear his/her costume around the house so that he/she gets used to wearing it and feels comfortable in it. Also choose shoes that your child can comfortably walk in to ensure that he/she will be okay during trick-or-treating.
  • Choose something FUN for them: Have your child take part in this special holiday by having them choose what they want to dress up as, but always keeping in mind the above stated. Here are some additional ideas and all-time favorites for Halloween:
    • Favorite TV/Movie Characters, such as Disney characters and super heroes.
    • Halloween favorites, such as witches, ghosts, wizards, and monsters.
    • Others: Animals and insects, such as cats, ladybugs, bees, dogs, and spiders are all simple yet fit the occasion!

Here are other tips to ease the difficulties related to Halloween:

  • Practice the trick-or-treating route in advance: In the days leading up to Halloween, walk with your child around your neighborhood and note his/her reaction. If your child feels scared with some decorations that include excessive lighting, have strobes or scary monsters, ghosts, and witches, then you will know to avoid these houses on Halloween.
  • Consider alternatives: If your child is not the one to walk around and may not like the Halloween decorations, then you may want to join with other parents so that you can host a Halloween party that is autism-friendly. If you don’t want to host a party, then consider attending a mall, local children museums, or any child friendly location that will have a themed activity.
  • It’s okay to stay home: If you think your child will not enjoy the Halloween festivities of going trick-or-treating and dressing up as something, then stay home. You can have your own Halloween fun by watching a movie, creating Halloween-inspired foods together, as well as arts and crafts that will get your child involved (stay tuned for our other post on Halloween Arts & Crafts).

Thus, Halloween should be a fun holiday for all of us! But do know that it can be a scary time for some children, so keep in mind all of the tips discussed above and be aware that comfort is key for your child’s happiness.

WRITTEN BY CLAUDIA MARMOL, BCBA

Claudia Mármol is a Board Certified Behavior Analyst (BCBA) and the founder of Heal the World Behavioral Services, a private ABA center that provides quality ABA therapy to children diagnosed with autism and related disorders in South Florida. Since 2007, Claudia has worked with numerous children of various ethnicities, backgrounds, and related disorders as well as typical children exhibiting problem behaviors in clinical settings, family homes, and schools. Claudia specializes in the development, implementation, and supervision of Verbal Behavior Programs in both English and Spanish.

“When This Mom Couldn’t Find What She Needed To Help Her Autistic Daughter, She Created A Site That Could”

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We’re incredibly THRILLED to share this inspiring feature on our President and Founder Julie Azuma just published today on Huffington Post. Julie was recently featured in Marlo Thomas’ new book It Ain’t Over… Till It’s Over, which reveals the stories of 60 different women who prove that it’s never too late to live out a dream. Brimming with anecdotes that will inspire smiles, tears, and—most of all—hope, Marlo Thomas’ book will speak to women of all ages.

Julie HuffPost Feature

We’re so proud of Julie and appreciate the invaluable help she’s given to so many. Congratulations, Julie!