Best Kept Secret – An Award-winning Documentary About Students with Autism Transitioning Out of School

We excited to let you know about Best Kept Secret, a new award-winning documentary about special education students, opening in NYC September 5-12. Directed by Samantha Buck, the film follows Janet Mino, a spirited and dedicated teacher in Newark, NJ as she struggles to prepare her students with autism to transition from safe and protective environment of school to the daunting and sometimes harsh realities of independent adulthood. If you’re in NY, we hope you will attend. To learn more about their outreach campaign, visit https://bestkeptsecretfilm.com/

At JFK High School, located in the midst of a run-down area in Newark, New Jersey’s largest city, administrators answer the phone by saying, “You’ve reached John F. Kennedy High School, Newark’s Best Kept Secret.” And indeed, it is. JFK is a school for all types of students with special education needs, ranging from those on the autism spectrum to those with multiple disabilities. Janet Mino has taught her class of six young autistic men for 4 years. They must graduate from JFK in the spring of 2012. The clock is ticking to find them a place in the adult world – a job or rare placement in a recreational center – so they do not end up where their predecessors have, sitting at home, institutionalized, or on the streets.

Best Kept Secret is playing at the following locations in New York:

UPTOWN: At the New MIST Harlem Theater
46 W 116th St  New York, NY 10026
Premiere 9/5 7pm and Q&A with filmmakers
Screenings 9/7 4pm & 6pm with panel discussions
Facebook Event Page

DOWNTOWN: At the IFC Center
323 Avenue of the Americas, New York, NY 10014
Playing 9/6-9/12

Volunteer for Autism-friendly performances of The Lion King and The Nutcracker in Pittsburgh

The Pittsburgh Cultural Trust and Pittsburgh Ballet Theatre, with support from ABOARD’s Autism Connection of PA, is bringing autism-friendly performances of The Lion King and The Nutcracker to Pittsburgh.

These presentations will be sensory-friendly performances that allow families with members on the Autism spectrum to experience a regular Broadway production with several alterations that meet the needs of the audience. Pittsburgh will be the third city to offer this type of program.

The Lion King performance is on Saturday, September 21, 2013 at 2:00 PM
The Nutcracker is on Friday, December 27, 2013 at 2:00 PM

Autism Connection is currently seeking professionals who work in the field, to volunteer for both of these performances. They will be needing assistance on numerous tasks, including guidance from the parking garage to the theater, quiet room and activity room aides, and in-theater support.

Interested professionals and individuals with experience in the field should fill out their Volunteer Questionnaire. Accepted volunteers will be contacted to attend an orientation session.

For more information about volunteering, please contact ABOARD’s Autism Connection of PA at support@autismofpa.org, or call (800) 827-9385.

Tickets for the Autism-Friendly Performance of The Lion King Go On Sale 7/9/13!

Don’t miss this opportunity to purchase your tickets to the 3rd Autism-friendly performance of the acclaimed musical The Lion King! The Theatre Development Fund (TDF), the largest non-profit organization for the performing arts, has been offering special performances to the autism community through its Autism Theater Initiative which aims to make theater accessible to individuals on the autism spectrum and their families. Tickets for the 1:00 PM performance on Sunday, September 29, 2013, will go on sale TOMORROW, July 9, 2013!

For this fall’s special performance, accommodations will be made including a supportive audience environment, designated quiet and activity areas, adjustments to lights and sound, and supplemental online resource materials.

Tickets are being offered through TDF at the following prices:

  • Orchestra (all seats): $80.00
  • Front Mezzanine (Rows A-F): $69.50
  • Mid Mezzanine (Rows G-H): $59.50
  • Rear Mezzanine (Rows J-L): $40.00

There is a limit of 6 tickets per order. For larger groups and further information, please contact Heidi Skirbe, Coordinator of the Autism Theatre Initiative at heidis@tdf.org or call (212) 912-9770 x383.

Tickets for the special performance are only available for purchase at www.tdf.org/thelionking.

2013 GRASP Benefit: “A Time for Change”

We were delighted to attend the 2013 Global Regional Asperger’s Syndrome Partnership (GRASP) Benefit last Tuesday, May 14, 2013 at the Downtown Community Television Center in New York to congratulate founder and former executive director Michael John Carley for his ten years of cultivating GRASP into the influential network of support groups it is today. Since its launch in 2003, GRASP has become a nation-wide organization that provides community outreach, support groups, advocacy, and education to adolescents and adults on the autism spectrum. The 2013 Benefit: “A Time for Change” also presented GRASP’s Friend and Benefactor Award, Distinguished Spectrumite Medal, and Divine Neurotypical Award to three prominent individuals for the work that they have done in the autism and mental health communities.

GRASP2013Benefit_Photo1 This year, GRASP awarded author Andrew Solomon the Friend and Benefactor Award for his book “Far From the Tree,” which describes the travails of families impacted by numerous diagnoses of deafness, dwarfism, Down syndrome, autism, schizophrenia, and more. His book “Far From the Tree” is considered one of the greatest tributes GRASP now has to pluralism itself. A native New Yorker, Andrew studied at Yale and is currently pursuing a Ph.D. in psychology at the University of Cambridge. He has also written several other novels, including “The Noonday Demon: An Atlas of Depression” and “A Stone Boat,” as well as pieces for the New York Times Magazine and The New Yorker.

GRASP2013Benefit_Photo2
The Distinguished Spectrumite Medal was awarded to Bob Hedin, who has contributed to GRASP’s national status by forming and leading the first GRASP network outside the tri-state area. As an individual with Asperger’s Syndrome (AS), Bob recognized the need for support groups for adults with AS and launched a membership drive in 2004 for adults with AS in Philadelphia. Since then, his group has grown to over 250 members and boasts a lending library of over 125 books on autism.

 

The Divine Neurotypical Award was awarded to scholar and researcher Dr. Barry Prizant, who has been a longtime friend to GRASP. Dr. Prizant has had forty years of experience as a clinical scholar, researcher, and program consultant to children and adults with autism and related developmental disabilities. His most recent work involved developing the SCERTS® Model for children who have or are at-risk for social-communicative difficulties, and their families. Barry also co-facilitates an annual weekend retreat for parents of autistic children each year, and has organized the ASD Symposium for parents, educators, SLPs, OTs, and therapists to address the importance of understanding interests, strengths, and talents of people with Autism Spectrum Disorder (ASD).

We want to congratulate Michael John Carley on the incredible work he has done with GRASP and as a spectacular human being. We know he will continue to do amazing things.

For more information about the history and mission of GRASP, visit their website at www.grasp.org.

Hope Springs Farm

We relish the opportunity to share creative, inspired programs that support individuals with developmental disabilities with you. Today, we want to tell you about Hope Springs Farm, a scenic 17-acre farm located in the quiet countryside of Hershey, Pennsylvania. Started by Neil and Nina Rovner to support their daughter, they now run a day program for adults with developmental disabilities and autism.The farm features a large activity center and program building surrounded by quaint flower beds, a 6,000 square-foot fruit, vegetable and herb garden, a barn, a large chicken house, fenced grazing pastures, wheel-chair accessible paths and plenty of swings and benches to take in the incredible views. The mission of Hope Springs Farm is to provide adults with developmental disabilities meaningful work on a farm and joyful group activities that lead to satisfying friendships in a licensed adult day program. Hope Springs Farm has a new motto, too – Real Farm. Real People.

Take a tour of Hope Springs and meet the Rovners and their program partcipants by watching this wonderful video. We think you’ll be as moved and inspired as we were.

 

“Ability vs. Disability” by Gary Shulman

It is important to remind ourselves as parents and providers of children with special needs of the little joys and pride we take in the skills and passions our children display. We recently received a moving anecdote from Special Needs Consultant and Trainer Gary Shulman about Matthew, whose six years of life has touched so many around him despite his label of being a disabled child. Please take a moment to read his story, for we do believe that “behind every child with a label of disability is a child with ability to be cherished, praised, and supported.”

Ability vs. Disability

Gary Shulman, MS. Ed.
shulman.gary@yahoo.com
Special Needs Consultant and Trainer

April, 2013

During my more than 24 years as Program Director of Social Services and Training Coordinator for Resources for Children with Special Needs and now as a private consultant and trainer, I have had the great pleasure of asking thousands of parents of children with disabilities to tell me about their children’s talents, skills, abilities and passions. Very often that question has been met with astonishment, “Someone is actually asking me to accentuate the positive as the old song says!” What a concept! My heart has always been warmed and my soul and spirit uplifted by the myriad responses that gleefully utter from the lips of these proud parents: “Susan is a gifted musician-she hears a song once then sits down and figures it out on the piano”, “My son swims like a fish!” “Thomas has memorized the entire subway system-he is passionate about trains.”, “Hector always greets me with a hug and seems to know when I am feeling down-he brightens up my life.” …and on and on. My response is to have everyone in the room praise and applaud these positive stories of hope, joy and delight. We of course also move on to discussing the needs, wants, wishes and dreams.

I often tell the story of an “angel” who blessed this world by the name of Matthew. When Matthew was born, the doctor who had obviously not been through any sensitivity training, felt compelled to tell the new parents the bad news that after conducting genetic testing, Matthew was determined to have a very rare condition called I-Cell Disease. “So what does that mean?-when can we bring Matthew home to enjoy and love him?” The doctor proceeded to elucidate that Matthew should not be brought home but rather institutionalized! He then felt compelled to share that Matthew’s immunological system would over the course of 5 or 6 years, destroy all organs in Matthews tiny body. “Why put yourself through such misery-he will never grow or develop. Needless to say these spiritual, caring, loving dedicated parents took Matthew home and received Medicaid under the Medicaid Waiver program to meet many of his complex medical needs. He was enrolled in Early Intervention where his miraculous and talented Occupational Therapist Ilaine, only saw the potential skills, talents and strengths. Matthew learned to happily feed himself, walk with a walker, sing, dance and love……..oh how this child gave and received love. He was pure love. This beautiful child positively affected ever human being who was fortunate enough to have the joy of knowing this angel on earth. I made him pancakes during one visit and he stopped eating for a moment, turned his steroid filled, barely moving body, to face me so he could tell me, “Hey Gary! These are delicious!” Matthew by the way had a photographic memory and could tell you every player in the Yankee dugout, give you directions to Grandma’s house and direct you to all food items in the supermarket.

There is no miraculous ending here — Matthew died after 6 glorious years on earth. Six years of love and joy. Six years of enhancing the lives of everyone who was fortunate enough to have known this miraculous child. At his funeral were all the friends, neighbors, family members and admirers whose lives had been touched by this angel of humanity. The doctor who had diagnosed Matthew of course was not present. His memory lives on in every workshop I conduct. His parents graced me with a gift that I will always cherish. Knowing that Matthew would soon be leaving this world, they had him record anything that he wanted to say to those people in his life whom he cared for. Sitting on my dresser is a small photo book with Matthew’s picture in it. There is a button in that photo-book. When you press that button, Matthew’s sweet voice can be heard saying, “Hello Gary-I love you!” His spirit helps to motivate all parents of children with disabilities who have been told by “professionals” what their children would never be able to do. Just as the Bumblebee should not fly according to scientists, yet does (because nobody has ever told the bumblebee he can’t fly) so too will all children with disabilities continue to FLY as long as we continue to recognize that behind every label of disability there is a human being with abilities, talents, skills and passions…………………..and love to give and receive. We must never take the hope away!

Behind every child with a label of disability is a child with ability to be cherished, praised and supported.

 

Pick of the Week: Bullying & ASD – The Perfect Storm – NEW from Autism Partnership

Work in Progress v6 Cover.inddBullying & ASD: The Perfect Storm – the brand new booklet and DVD from Autism Partnership – comes at a most important time. Recent school bullying and cyberbullying statistics show that:

  • 1 out of 4 kids are bullied
  • 77% of students are bullied either mentally, verbally or physically
  • Cyberbullying statistics are rapidly approaching similar numbers, with 43% experiencing cyberbullying
  • Of the 77% of students that said they had been bullied, 14% of those who were bullied said they experienced severe (bad) reactions to the abuse

Bullying is a real and pressing issue in our schools and online, and children with autism spectrum disorder are especially at risk. In the most recent volume of the Work in Progress Companion Series, Doctors Leaf, McEachin and Taubman explore not only the reasons that children with ASD are targets for bullying, but more importantly, they offer realistic and attainable strategies for kids on the spectrum.  

Several traditional methods of dealing with bullies are explored in this booklet and DVD, including avoidance, informing an authority figure, and fighting back.  In addition, there are strategies for educating and preparing the victims so that students with ASD can better combat bullying.  The included DVD features over an hour and 40 minutes of footage including advice from experts, one-on-one interviews with students, and real classroom brainstorming sessions where students with autism spectrum disorder are shown:

  • The difference between teasing and bullying
  • How to avoid the behaviors invite bullying, including determining the important difference between “cool” and “uncool”
  • When and when not to listen to peers
  • How to react to a bully

This week only, save 15% on the important new booklet and DVD – Bullying & ASD: The Perfect Storm –  by entering the promo code BLOGBASD2 at checkout.

*Offer expires on April 30, 2013 at 11:59 pm EST. Not compatible with any other offer. Be sure there are no spaces after the Promo Code when you enter it at checkout.

New Low Price on Our Language App: Tell Me About It!

tell me about it iconAutism Awareness Month excitement continues…We’re thrilled to announce that for the rest of April, you can purchase our App Tell Me About It! Learning Language by Receptive Function, Feature & Category for the low price of $2.99!

Tell Me About It! teaches the label, category, function, and features of more than 235 language targets over 6 levels of incremental difficulty, with over 1000 unique testable attributes. The presentation of each language target conforms to an Applied Behavior Analysis (ABA) discrete trial program, with reinforcement provided by a token economy system. Tell Me About It! provides a self-contained discrete trial program that error corrects and provides direct and immediate reinforcement while collecting and synthesizing data for up to 10 students. There is a Student Report Card that displays data for each student, with an option to email the results.

For students with speech and language delays or for those with Autism Spectrum Disorder, learning to simply label an image doesn’t necessarily translate into comprehensive understanding of that word. By breaking down each language target by its category, the function that it serves and its salient features, we offer students the opportunity to fully comprehend and then engage in language.

Level 1 

Categories

The App covers 15 categories of language targets that include: Animals, Body Parts, Clothing, Food, Household Items, Dishes, Utensils, Tools, Toys, School Supplies, Sports, Vehicles, Accessories, Furniture, and Musical Instruments.

 

 

 


Levels

The App advances from the basic building blocks of language – simple labeling – all the way through shared features across categories. The Levels presented in incremental difficulty are:

Level 1: Labels
                Level 2: Categories
                Level 3: Function
                Level 4: Feature
                Level 5: Randomized Feature, Function, Category
               Level 6: Shared Featured, Function, Category

Teacher Console

 

Teacher’s Console            

Teachers and parents can delve into the Teacher’s Console to control the settings for each student by turning the written labels for each language target ON/OFF, selecting a specific token character, selecting the default Level, and choosing a Reinforcement Schedule.

There is even a motion that administrators can use while a game is in progress to access the Teacher’s Menu to adjust the settings or view reports. To access the Teacher’s Bar, simply swipe 2 fingers in an upward motion from the bottom of the screen up:

 TeacherGesture

Reinforcement Schedule

The Reinforcement Schedule determines how many targets the studentmust answer correctly in order to complete a trial session and obtain a 5-10 second animation reward.  There is an option for 3, 5, or 10 tokens and you can even select the character you want or keep the default setting of Random.

 End of Game

Reporting & Data

Tell Me About It! tracks each student’s progress and provides a Report after every trial as well as a comprehensive Report Card accessible in the teacher’s console. You’ll see a + for every correct response and a – for incorrect ones. If a student hasn’t yet mastered a target, you’ll see the number of presentations in parentheses after the score.

Report Card

Determining Mastery of Targets

This App strives to mimic an actual one-on-one instructional session with a therapist as much as is possible in an application. For this App, we determine which targets will be defined as mastered by the program in a variety of ways depending on how many times it has been presented.  When answered correctly on the very first presentation, the student receives both a token and verbal praise and that target is considered “known” or mastered and not presented again on that level.  If the answer is not correct on that first presentation, the target will be reintroduced in subsequent trials and must then be answered correctly on two different, consecutive presentations to be considered mastered. When an incorrect response is given, error correction is provided by having the correct image flash while verbal correction is also provided. The App then shuffles the placement of the images, and re-presents the same question. If the student answers correctly on this second attempt, they receive verbal praise only (no token) and then move to another question.  Note that your Data sheets will display, in parentheses, how many times each target has been presented so that you are always aware of your student’s progression and where there might be deficits.

 

World Autism Awareness Day

In recognition of World Autism Awareness Day, UN Secretary-General Ban Ki-moon noted that early interventions can make a tremendous impact on the lives of children with autism.

With the number of children affected with autism being reported as high as 1 in 50, there is an urgent need to ensure that children are given a proper diagnosis along with early intervention and behavioral therapy that will make a difference in their lives. Our products are geared towards educating and empowering children at every step, from early intervention to school-age programs.

In honor of World Autism Awarness Day and Autism Awareness Month, Different Roads is thrilled to offer 25% off storewide today through April 4.*  To redeem your savings, please enter the Promo Code WAA13D at www.difflearn.com or call us at 800-853-1057 to place your orders.

 

*Sale does NOT apply to the following products: VB-MAPP Assessment Kits (DRK 700, DRK 701), ABLLS-R Assessment Kits (DRK 702, DRK 703), 10- and 25-packs of VB-MAPP Protocols (DRB 682, DRB 683).*

WAA13D Sale runs from April 2, 2013 through April 4, 2013 at midnight EST.

**This promotion cannot be applied to previous orders.**

 The coupon code must be entered during checkout to receive offer. Offer only applies to selected products and not those currently on sale. Your order must be placed during the time of the World Autism Awareness Day Sale to qualify for this special offer. This promotional offer may not be combined with any other promotional or discount offers.

Autism-friendly peformance of ‘Spider-Man: Turn Off the Dark’ presented by TDF

Our spidey sense is tingling! The Theater Development Fund is once again sponsoring an autism-friendly, special performance of the NY Broadway show Spider-Man: Turn off the Dark. This show was specifically chosen by families as the show their children wanted to see most. As with their past performances of The Lion King and Mary Poppins, the special performance will cut jarring sounds and strobe lights. Quiet areas with beanbag  chairs and coloring books will be available. In advance of the show, TDF will also post social stories on their site, listing out what attendees can expect at the show.

You can buy tickets for the April 27 show at the TDF site: https://secure2.tdf.org/event/step1.html