Simplifying the Science: Are You Giving Your Student Enough Freedom?

One of my favorite research papers was published in the Journal of Applied Behavior Analysis in 1990 by Diane J. Bannerman, Jan B. Sheldon, James A. Sherman, and Alan E. Harchik. The title is Balancing the Right to Habilitation with the Right to Personal Liberties: The Rights of People with Developmental Disabilities to Eat Too Many Doughnuts and Take a Nap. It’s an in-depth look at the level of control practitioners can exert over the individuals they serve, and the implications of that control.

It’s important to consider the ethical implications of requiring the individuals we work with to complete specified exercises at scheduled times, eat a healthy diet for all meals, and limit TV. I have seen situations in which the practitioner is holding the individual with developmental disabilities to a higher standard than they hold themselves! Most of you reading this can probably quickly rattle off the name of the last TV show you “binge-watched” or the delicious ice cream you enjoyed too much of.

So how do we teach making appropriate choices to individuals with developmental disabilities without denying the personal freedoms we all value?

One quote from the paper states, “Not only do people strive for freedom in a broad sense they also enjoy making simple choices, such as whether to engage in unproductive, though harmless, activities, like watching sitcoms on television, eating too many doughnuts, taking time off from work, or taking a nap before dinner.” In an effort to teach our learners independent skills, we often neglect to teach meaningful decision-making that reflects the types of decisions neurotypical adults make every day. Since the paper was originally published, there has been more work done on promoting decision-making skills for learners with developmental disabilities, but the issues described in the paper are still relevant today.

Here are a few key considerations described:

  • We need to consider client preference when creating daily schedules, goals, and access to preferred activities.
  • A client’s refusal to participate in an activity may not be a failure to teach appropriately but an expression of preference.
  • It is important for practitioners to teach choice-making. The paper states, “Many people require teaching to help them discover their own preferences and learn to make responsible choices.” We should consider this as an essential step towards promoting independence in our clients.
  • Inflexible schedules for clients can sometimes be obstacles to opportunities for choice-making.

The paper goes on to cite multiple research articles and laws for both sides of the argument about the right to choice for those with developmental disabilities. You can read the full text here.  Overall, I consider this article to be essential reading for anyone working with clients with disabilities. It provides a lot of information to support its final conclusion that “all people have the right to eat too many doughnuts and take a nap” and we have the responsibility to teach clients how to exercise such freedoms.

WRITTEN BY SAM BLANCO, msed, BCBA

Sam is an ABA provider for students ages 3-12 in NYC. Working in education for ten years with students with Autism Spectrum Disorders and other developmental delays, Sam has developed strategies for achieving a multitude of academic, behavior, and social goals.

On the Need for Crisis Intervention Training: A Guest Article by Bobby Newman, PhD, BCBA

Last week, we discussed a comprehensive checklist for parents in placing their children in the right school environment. Service providers in special education programs play a vital role in students’ daily lives at school and are expected to understand certain protocols when behavioral difficulties arise. We couldn’t think of a more appropriate article than that of Bobby Newman, PhD, BCBA to shed light on this need for crisis intervention training in order to ensure the best learning environment for students.

On the Need for Crisis Intervention Training
by Bobby Newman, PhD, BCBA-D

It was one of those moments in life that seemed scripted. A colleague and I were being given a tour of a public school, a prospective placement for a student of my colleagues. The student in question had a history of aggressive behavior towards staff and bolting from the classroom towards the street. How such physical crises were going to be addressed was thus a major concern of mine. I asked the tour guide, the principal of the school, how such matters were handled and whether staff were formally trained in any crisis intervention philosophy and techniques. She informed me that they were not, but that there were “informal things that staff had taught one another.”

As if on cue, at that very moment a student came sprinting past us, with a staff member in pursuit. The staff member reached out and grabbed the sprinting student by the back of the collar, effectively stopping him by choking him with his shirt. My usual flimsy professionalism couldn’t survive this seemingly scripted moment, not to mention the loud choking noise, and I asked, “Is that one of the things staff have shown each other?”

Further questioning revealed that when students had serious outbursts, 911 was called. My mind went to Chicago where in 2012, police were called to the home of a child with autism during a behavioral crisis with tragic results. Very little else needed to be known to determine that the student’s parents would never agree to this school placement, and I couldn’t say that I blamed them.

Crisis intervention is one of those very sensitive issues in the field of developmental disabilities. There are people who want to ban the physical portion of crisis intervention training, either due to liability concerns or perhaps due to abuse concerns. I will agree that the potential for abuse exists if staff are allowed to put their hands on students/consumers. I will argue, however, that the possibility of abuse is much greater if we do not train and if we do not have formalized systems in place, or at least for mass exclusions of people from less restrictive settings due to the inability to maintain them there safely in such environments. Let me develop my argument:

  • Due to the nature of some developmental disabilities (e.g., difficulty in developing communication skills or sensory defensiveness), behavior that is not typical of same age peers can occur.
  • This behavior may sometimes take forms that can be dangerous to the person engaging in them (e.g., running into hazards or self-injurious behavior) or dangerous to those around them (e.g., aggression towards others or environmentally dangerous behavior such as object destruction).
  • At such times, we may be facing a “crisis,” when injury to self or others is imminent and probable and “crisis intervention” (verbal and possibly eventually physical) may be necessary to keep everyone physically safe. The guiding idea behind crisis intervention is to keep everyone safe. This includes the person engaging in the behavior, peers, and staff.

I wish to emphasize that a crisis is NOT an everyday occurrence. A crisis should not be routine, it should arise as a relatively infrequent occurrence that needs to be dealt with via crisis intervention protocols at that moment. I wish to distinguish crisis intervention from “behavior treatment plans,” which must be in place for behavior we often see from the individual in question. If you’re doing crisis intervention frequently, then this a matter for discussion of alterations to behavior management plans or resource allocation/availability. Crisis intervention is not a consequence meant to change the probability of behavior via a punishment contingency, and any physical interventions where one must put their hands on a student should be a last resort.

Even with this caveat in place, some would make the argument that crisis intervention training should not be provided, that it gives staff permission to be overly physical with students. While I will grant such a possibility exists, as I always tell my ethics classes, the argument about what you are not willing to do is not enough. One must be prepare to answer, “and then what?” Suppose staff were not trained. When a crisis occurred, they would be left with “doing the best they can” or otherwise improvising in the moment. Given this set of circumstances, staff would respond in their own ways to crises and injuries and abuse become probable, not just possible, as staff panic or lash out with whatever self-defense techniques they can think of or act in keeping with a faulty knowledge of body mechanics or physical hazards (witness the “choke stop” described above).

To summarize, the implications of the “do not train” argument are:

  • I know there will be crises due to the behavioral history and repertoires of the students in the program
  • I’m concerned about liability or staff becoming heavy-handed, so I’d rather not train people to safely deal with the crisis, I’d rather trust to their natural impulses or an “unofficial” policy/procedure that has grown up within the program.

What must be appreciated is that good crisis intervention training systems are based on sound behavioral principles, providing the supports the individual needs, rather than on controlling the behavior of the individual physically. The vast majority of crisis intervention training is based upon preventative measures that aim to teach the individual self-control and alternate behaviors, and to create settings that are not likely to create crises in the first place, rather than sheer physical intervention. Should a physical intervention be needed, safety is a foremost concern. Techniques are performed in such a way as to attempt to minimize injury. No technique, for example, is meant to cause pain, is meant to scare, uses impact for behavior control, or moves a limb beyond its normal range of motion.

To sum up the basic argument:

  • We know behavioral crises that can lead to serious injury may occur
  • If we do not train people, we are trusting the staff member’s individual reactions or “unofficial policy’ that cannot be traced or analyzed as it is unofficial.
  • If we do train people, however, we can create standards of conduct and accountability and we can aim at program design that avoids the need for physical intervention.

This seems to me to be our best bet for creating programs that are humane, not emotionally reactive, and encourage the development of effective problem solving strategies that rely on behavioral interventions, rather than relying on physical intervention by staff to keep everyone safe. This seems to me to be most consistent with ethical practice of Applied Behavior Analysis.

About the Author

Bobby Newman is a doctoral level Board Certified Behavior Analyst and Licensed Psychologist. Bobby is the first author on twelve books and has published over two dozen articles in professional journals, as well as numerous popular magazine articles and has hosted two series of radio call-in shows. Bobby is the Past-President of the Association for Science in Autism Treatment and the New York State Association for Behavior Analysis. A popular speaker, Bobby also provides direct treatment, staff training and consultation around the world, and has been honored for this work by several parents and professional groups. Bobby is a SCIP-R (Strategies for Crisis Intervention and Prevention, Revised) instructor and has published a manual to accompany crisis intervention training (Gentle Redirection of Aggressive and Destructive Behavior). In addition to his other clinical work, Bobby teaches non-violent crisis intervention philosophy and techniques for schools, agencies and families.

Hope Springs Farm

We relish the opportunity to share creative, inspired programs that support individuals with developmental disabilities with you. Today, we want to tell you about Hope Springs Farm, a scenic 17-acre farm located in the quiet countryside of Hershey, Pennsylvania. Started by Neil and Nina Rovner to support their daughter, they now run a day program for adults with developmental disabilities and autism.The farm features a large activity center and program building surrounded by quaint flower beds, a 6,000 square-foot fruit, vegetable and herb garden, a barn, a large chicken house, fenced grazing pastures, wheel-chair accessible paths and plenty of swings and benches to take in the incredible views. The mission of Hope Springs Farm is to provide adults with developmental disabilities meaningful work on a farm and joyful group activities that lead to satisfying friendships in a licensed adult day program. Hope Springs Farm has a new motto, too – Real Farm. Real People.

Take a tour of Hope Springs and meet the Rovners and their program partcipants by watching this wonderful video. We think you’ll be as moved and inspired as we were.

 

Pick of the Week: Know the Code at School – Social Skills Card Games

Know the Code at School is a behavioral and social skill card game that illustrate 50 social skills in typical school scenarios. Each card shows a skill with a relevant photo, lists five sequential steps to accomplish the skill and suggests a talking point. The cards are great for games and role plays at an elementary or middle school level.

This week only, save 15% on the Know the Code at School cards by entering the Promo Code BLOGKC9 at checkout.

*Offer expires on April 3, 2012 at 11:59 pm EST. Not compatible with any other offer. Be sure there are no spaces after the Promo Code when you enter it at checkout.

Pick of the Week: Sign to Talk Nouns Flashcards

Sign to Talk: Nouns presents 150 photographic flashcards designed to shape verbal language specifically for individuals with autism and other developmental challenges. These cards are ideal for their crisp, clear images and their Kaufman Speech Praxis word shell breakdowns which help to shape articulation skills on the back of each card. The set offers myriad teaching opportunities as each card also depicts a photo of a person demonstrating the sign in ASL and a description of the hand shapes for each target item. Use this deck for home or school, to teach sign manding, or for the child-appropriate images that aid in any language acquisition program.

This week only, save 15% on the Sign to Talk: Nouns by entering the Promo Code BLOGSTN at checkout.

*Offer expires on February 7, 2012 at 11:59 pm EST. Not compatible with any other offer. Be sure there are no spaces after the Promo Code when you enter it at checkout.

Special Needs Talk Radio has debuted!

Coffee Klatch, a corporation dedicated to providing resources and educational programs for families with special needs children, has a new sister company called Special Needs Talk Radio which features interviews with leading experts, advocates and more in the field of Special Needs. Special Needs Talk Radio debuted on September 6 and will present six new shows hosted by twelve different moderators. This new network is aimed at providing parents with the most current news and information covering a wide range of special education topics.

The network will present six shows that will be broadcasted weekly and are currently scheduled to run through mid-October. They cover topics from Parenting Issues, Raising children with ASD, Special Education and the Law, Inclusion and more. The website also offers interactive features that allow users to be actively engaged in the content by suggesting topics, making comments, and asking questions that can be answered during the live shows.

To find the show schedule and to learn more about each program and upcoming guests, visit:

Special Needs Talk Radio

Defining ‘Essential’ Care

 

With healthcare reform underway, this article in the Wall Street Journal highlights the differences between habilitative services and rehabilitative services and how those definitions will impact future insurance coverage. The article specifically looks at coverage for children with Autism and whether early intervention services will be covered or considered reimbursable expenses. More specifically, if services defined as habilitative are indeed covered, families would be entitled to behavioral therapy as well as speech and OT. Opponents claim that the costs would be too high. What are your thoughts on the issue?

Billions of Dollars Allocated for Community Living

According to Disability Scoop, part of the Health Care Reform Act allocates substantial funding to help individuals with disabilities access care within their communities and not in institutions. The money is available to help people with disabilities who are living in institutions transition into the community with services and supports. Read the full article here and let us know what you think.

Discoveries Program at the NY Metropolitan Museum of Art

We just found out about this program and think it’s fantastic! Discoveries is a Sunday program offered at the Metropolitan Museum of Art for adults and children with learning and/or developmental disabilities and their friends and family members.  Each Discoveries workshop focuses on a theme and includes a gallery tour followed by a related art activity. The program is free of charge but advance reservations are necessary. Here’s the upcoming schedule:

Guitar Heroes: Legendary Craftsmen from Italy to New York
March 20
11 am – Ages 6-17
2 pm – Ages 18 and above

April 10
11 am – Ages 18 and above
2 pm – Ages 6-17

Rooms with a View: The Open Window in the 19th Century
May 1
11 am – Ages 18 and above
2 pm – Ages 6-17

May 15
11 am – Ages 6-17
2 pm – Ages 18 and above

Group Residences and Organizations:

The Museum offers customized programs for adult group residences and other agencies that serve adults with developmental disabilities.  For scheduling and fee information, call (212) 650-2010 or email access@metmuseum.org.

For anyone living in or visiting New York, the museum is an absolute  gem and a lovely place to spend a day roaming about. We’re thrilled about the Discoveries Program!