What Kind of Assessment is Right for Your Child?

By Mariela Vargas-Irwin, PSYD, BCBA-D, LABA, Executive Director of ABLS

Every day was hard with 5-year-old Tony. He would purposely find ways to annoy others and just did not seem to respond to consequences. The school tested him and said that there was nothing wrong; in fact, they said he was gifted.

Another child, Latoya, was never the same after being in a car accident. She cried all night and refused to get into any car. She also seemed to be unable to play with any of her previously preferred toys for long and had frequent tantrums.

Then there was 10-year-old Maria, who didn’t seem to be making any progress at school. She had an intellectual disability and her Individualized Education Program looked good on paper. However, she was becoming more aggressive each day and her language continued to be very limited.

Finally, Autumn, 2 years old, was in a fog. She stopped saying mama and dada, cried for no apparent reason, and ran in circles all the time.

Developmental and behavioral concerns about your children, such as those listed above, can be extremely distressing. Of course, you would do anything for your child!

But where to start?

What Tools Do I Need?

The first step is to consult your pediatrician. They will be able to rule out any possible medical problems and are more likely than a specialist to be able to see you quickly. Once a physical cause for your concerns is ruled out, your pediatrician will most likely refer you to a psychologist for an assessment. There are, however, several kinds of assessments that can be conducted.

A Comprehensive Diagnostic Assessment will include a cognitive and an adaptive assessment. It may include both norm-referenced assessments that compare children to others, as well as criterion-referenced tests that compare students to themselves. A Comprehensive Diagnostic assessment may result in a diagnosis such as Autism or Attention Deficit Hyperactivity Disorder.

The psychologist or a behavior analyst may also perform a Functional Behavior Assessment. A Functional Behavior Assessment examines the functions of the behavior via direct and indirect methods helping guide the development of a Behavior Support Plan.

Another type of assessment that may be helpful is a Program Assessment. A Program Assessment includes a visit to your child’s school to determine whether their needs are being met and their Individualized Education Program is being implemented properly.

Lastly, a Neuropsychological Assessment examines executive functioning skills, attention, and memory, in addition to cognitive and adaptive skills. 

How Would Assessments Help My Child?

To speak to the above examples, Tony would need a Comprehensive Diagnostic Assessment and a Functional Assessment to ascertain the function of his aggressive and disruptive behavior. The fact that he is gifted intellectually does not rule out that he may be struggling with Attention Deficit Disorder with Hyperactivity, Autism, or Post Traumatic Stress Disorder.

Latoya would need a neuropsychological assessment that will examine executive functions, language, and attention to ascertain the impact of the accident on her neuropsychological functions. Typically, a complete neuropsychological assessment is conducted immediately after the accident and then repeated every six months.

Meanwhile, Maria would require a Program Assessment to determine whether her school program is meeting her needs. This assessment should include a complete review of her progress reports in addition to a visit to her school. She may also need a Functional Assessment of her aggressive behavior at home.

Lastly, Autumn urgently needs a Comprehensive Diagnostic Assessment to rule out Autism.  If she does have Autism, she will need intensive early behavior analytic intervention to be implemented as soon as possible so time is of the essence. 

Whatever the assessment process holds for your learner, it is important that the instruments used are both reliable and valid, and ideally they would be able to be utilized to track progress over time. Every child is different; therefore, no assessment process will proceed identically. 

About the Author

Dr. Mariela Vargas obtained her doctoral degree from Rutgers University, completed her internship at Boston Children’s Hospital, and pursued post-doctoral training at the Baker Children’s Center. She has over thirty years of experience working with children with autism and other developmental disorders with behavioral challenges. Dr. Vargas has worked as a home-based behavioral therapist, overseen home-based programs, designed training protocols for ABA therapists and supervisors, and consulted with families and schools. She was the second president of the Massachusetts Association for Behavior Analysis and has presented in numerous national and international Autism and ABA conferences. A licensed Psychologist and Board Certified Behavior Analyst, she is the founder and executive director of Applied Behavioral Learning Services (ABLS). Her interests include inclusion, psychometrics, social skills, and executive behavior.

Jack Matters, Too: A Mother’s Perspective on Her Son’s Place in the Autism Community

This month’s ASAT feature comes to us from Judith Ursitti. To learn more about ASAT, please visit their website at www.asatonline.org. You can also sign up for ASAT’s free newsletter, Science in Autism Treatment, and like them on Facebook!

Judith Ursitti, Mother of Jack

I love this young man with all of my heart. I worry about his future. He has so much to offer this world. But frequently, I read things that seem like they deny the realities of valuable humans like him.

He’s not a savant. He doesn’t type. He gets up in the morning and gets ready for school. He works hard every day, striving for connection and independence, supported by a team of loving therapists.

Speech, OT, PT, ABA,… All of it aimed at empowering him. He runs and swims after school. Exercise is such great medicine. He’s not into TV or movies, really. He spends no time on the internet. He loves listening to music on his iPad. Lately, it’s been Katy Perry and Kanye.

He was diagnosed with autism at age two. He was diagnosed with a severe intellectual disability at nine. A diagnosis of OCD came a little later. This combination of alphabet soup brings a lot of pain and struggle. He’s hurt himself. He’s hurt me. It can be hard.

He loves and is loved. He likes to swing as high as the swing will go. He loves to go to the store. He loves to go to Outback Steakhouse and eat wings. He loves his sister and is sometimes annoyed with her. He likes to hang close. He also likes to be left alone.

He hums and rocks and paces. He laughs. He enjoys looking in the mirror and making goofy faces. He screams loudly over and over and laughs and laughs and laughs. He is authentic. Refreshingly so.

He is not the prom king. He is not represented in research or the media very much. It’s very hard for researchers to include people like him in their work. His sensory challenges, his inability to read or write or speak leave him on the periphery of autistic representation.

I have many autistic friends with various profiles. They are some of my favorite people. Truly. The truth is his severity makes him really different than them. I’m not even certain that the shared diagnosis is accurate. But hey, I’m not a scientist.

But I do think this is such a compelling reason to work really hard to conduct research for people like him. Individualized supports and services can really help human beings like him.

What’s the point of my rambling? Please just know that when you hear the word autism, or you read something by autistic authors representing the autism community, it’s generally not inclusive of people like my son. This needs to change. His experience matters.

He and so many others like him need inclusion, acceptance, and support, particularly from their own community. They desperately need research to provide answers and to improve their quality of life.

The ongoing balance of joy and pain is part of the human experience. But his version of it weighs heavily on him. He deserves peace. Please don’t forget about people like him.

About the Author:

Judith Ursitti is Vice President of Government Affairs for the Council of Autism Service Providers (CASP). A CPA by training, she spent a decade working in tax accounting. She became immersed in the world of autism advocacy when her son, Jack, was diagnosed at age 2. Since his diagnosis, she has worked on the passage, implementation, and enforcement of autism-related legislation nationwide. She worked for Autism Speaks as their director of state government affairs for over a decade. She has served on the Massachusetts Autism Commission, where she co-chaired the Commission’s 14-22/Employment Subcommittee. She also serves as the public policy chair of the National Council on Severe Autism and is the co-founder of the Profound Autism Alliance. She frequently writes about autism advocacy and her experiences parenting a son with profound autism.with autism.

Citation for this article: ​

Ursitti, J. (2022). Jack matters, too: A mother’s perspective on her son’s place in the autism community. Science in Autism Treatment, 19(7).

Posted in ABA